WNY Family Magazine July 2019 | Page 42

TRAUMATIC BRAIN INJURY continued... wrong with your child, never take no for an answer. Fighting for him or her is the very best gift you could ever give. Teachers: Know what to look for. Learn signs of undiagnosed, closed-head TBI and keep track of signs/symptoms that might apply, says Galloway. Be on the lookout for children who seem unable to make friends, are excluded by their peers, or struggle to keep up with the rest of the class, despite adequate IQ levels. If their symptoms match TBI symptoms, talk to their parents and encourage them to follow up with a physician. Maintain an open dialogue with the parents. Foster an “outcast-free” class- room. Children who are cognitively or behaviorally delayed due to TBI (or any other number of conditions) may have trouble making friends and fitting in with their peers. As the responsible adult in the room, make it a point to usher any child who seems like a loner or outcast into the group. Children with TBI can sometimes have difficulty working in a group, so encourage the other children to help them be part of the team. You can also rotate classroom seating charts so that all children have chances to sit be- side new people and make new friends. Stop bullying in its tracks. Always enforce an anti-bullying policy in your classroom. Let everyone know that bully- ing of any kind is not acceptable in class, on the playground, or anywhere else. En- courage your students to report instances of bullying to you as well. Actively teach kindness, empathy, and compassion. Doctors & Psychologists: Don’t dismiss parental observa- tions (and resist the urge to blame them for their child’s behavior). “I recently attended a conference at a ma- jor medical school, and a physician was speaking on how to assess TBI in the Emergency Department,” says Gallo- way. “There was a list of medical crite- ria to consider, but number one on the ‘What to Ignore’ list was parental obser- vation! When parents are ignored often enough — or worse, blamed for their child’s failures — they’ll eventually avoid addressing these issues of con- cern. They’ve come to you for help so 42 WNY Family July 2019 put yourself in their shoes and keep an open mind. Self-doubt can set in when parents are blamed continually, and the child pays the price.” Don’t rush to misdiagnose TBI as a behavior problem. The signs of a TBI might not be the “obvious” ones that physicians look for during an exam. They might look like social issues, la- ziness, or manipulation. Or they might look like some other problem depending on a specialist’s area of expertise. (Con- sider the adage “When you have a ham- mer, everything looks like a nail.”) Offer tests to identify TBI. If a child has received a blow to the head and is displaying hallmark symptoms of TBI (or even symptoms that might indicate TBI), offer diagnostic testing sooner than later. Luke’s TBI was eventually diagnosed with a SPECT scan, but a CT or MRI may also help with a diagnosis. Remember that for treatment, time is of the essence. The earlier the child’s TBI is identified, the better. He or she will then have the guided help needed for school, and peers and family will be taught to understand and to be a benefi- cial support system. And while it’s never “too late” to treat a head injury, any delay can be damaging, so seek help as soon as you realize there might be a problem. Peer Groups & Their Parents: Challenge yourself to find empa- thy. It is very easy to keep your child and family away from a child who struggles or doesn’t fit in with the popular crowd. Galloway — who was also shunned by other parents because of her son’s sweet but disconnected behavior — urges all parents to find empathy and resist the urge to judge and avoid others. You never truly know the struggles someone else may be facing. Of course, keep your family safe, but learn to differentiate be- tween “different” and “unsafe.” Teach your kids to be kind. Even in an age where bullying is a hot button issue, some children still treat other chil- dren with shocking cruelty. Do all you can as a parent to teach your children about the hurtful impact of cruel words and actions, and enforce a kindness-only policy in your household. When your kids learn kindness from an early age, it lasts a lifetime and reaps many rewards in turn. Don’t exclude your child’s peer who is struggling. Luke was excluded by most of his peers all throughout his school years. In fact, he was one of only two children not invited to a middle school graduation party. Incidents like this were, of course, very hurtful for Luke and his parents. Galloway urges parents not to let their kids ostracize any child from group activities. If you are throw- ing a party for your child’s whole class, be sure to invite everyone. The same goes for bringing cupcakes to school or handing out Valentine’s Day cards. Recognizing TBI for what it is — an organic injury to the brain — and then supporting early identification, treat- ment, and understanding will go a long way toward preventing the affected per- son’s slide into unsustainability as an adult. This will help to keep everyone safer from the potentially impulsive and harmful outcomes that can occur if the condition is ignored and those affected are isolated and abused. Even though her own son didn’t survive the ramifications of late-iden- tified TBI, Galloway urges everyone to challenge themselves to stop fearing and punishing TBI sufferers for behav- iors outside of their control. With raised awareness, we can recognize TBI symp- toms sooner, and life-saving treatment can be offered in place of undue judg- ment and punishment. “Undiagnosed TBI can ruin or even end a person’s life,” concludes Gal- loway. “But with increased awareness and a commitment to see TBI suffer- ers for what they are — victims of an organic brain illness — we can finally stop throwing them away and instead get them the help they need and deserve.” Claire Galloway is the author of “A Call to Mind: A Story of Undiagnosed Childhood Traumatic Brain Injury.” She has been ad- vocating for greater awareness of closed- head traumatic brain injury in children since 2008. She has spoken at several brain injury conferences and to students of edu- cation. This is her first book. She resides in Virginia with her husband, Mark. For more information, visit www.acalltomindtbi.com.