The SpecialMoms Parenting Magazine 2nd Issue | Page 6

Paul Murasko
I am blessed to have a wife whose passion is
to educate and advocate for Jacob and those
with special needs. It seems like I am learning
something new almost every day. The best
advice I can give is to make sure you are actively
involved in your child’s education. Don’t expect
everything to go smoothly. Know your and
your child’s rights, and remember if you don’t
advocate for your child, no one will. I would also
strongly encourage everyone to understand your
health plan. Coverage for therapies in particular
can be very complicated and costly.

my first eight years of being Jacob’s dad is any
indication, I can tell you I am in for an incredible
ride and a journey of a lifetime!

As the breadwinner for your family, how
have you planned for the future of your
child with special needs?
We have created a special needs trust to ensure
Jacob is taken care of when we are not there to
help. I would encourage all parents of special
needs children to begin having that conversation
with their lawyer and financial advisor to ensure
things are in order…because, as you know, you
won’t always be there for your child.

What advice can you give to other
fathers of special needs children?
Remember you are not alone out there. Don’t be
afraid to ask for help, seek others who might be
able to provide support and always be active and
involved in your child’s activities. Being a father
is one of the biggest responsibilities a man can
have. No one should shy away from it. You will
get much more back than you will ever give. If

What goals or dreams do you see in the
future for your child?
Being involved in school and extracurricular
activities,
going
to
college,
possibly
ClemsonLIFE and being as independent as he
can when he reaches adulthood. •

Jacob’s Journal – My Journey Home
When I first learned of my son’s diagnosis when I was four months
pregnant, I knew that I wanted to document everything.
Being a first-time mom and knowing that there was going
to be a lot of medical information told to us, I decided
I wanted to keep a journal.
So I kept a journal, documenting all the different procedures,
medicines and day-by-day events that lead up to my son’s
first surgery at 16 days old.
After we got home and a whole new routine of therapies and
doctor visits took place I still kept my journal, well as best I could.
So I decided I wanted to write a book to share our story
with other parents who were given the news that their child
will have a disability.
This story is unique in the way I wrote it, since I chose to
write it as if my son was telling the story. This story will take you
on an incredible faith-filled journey as a family enters the world of
having a child with special needs.

Available on Amazon

for $16.95

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The book is available on Amazon for $16.95
You may purchase this book through Amazon by clicking My Book

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