Jankriti International Magazine Jankriti Issue 27-29, july-spetember 2017 | Page 180

Jankriti International Magazine/ जनकृसत अंतरराष्ट्रीय पसिका themselves. Now, he is 10 year old who neither could get the proper treatment nor any special school for his better upbringing. It is his mother or his grandmother who generally remain with him at all the time for every single step. His mother do all the things from making him eat to change his clothes. The life of Nitin and his mother is so connected with each other. Coming from a very underprivileged background, his family does not know how they should get the proper treatment of Nitin and even his PWD Certificate. FINDING FROM THIS RESEARCH 1. Through first two participants, I have noticed that since the children of age group from 1 to 10 constantly require the attention of some elder person. At home, usually mother who always looks after them. As mentioned by Mrs. Suman in her interview that she cannot leave her children alone otherwise they either break or create something or the other. That’s why, she either prefers to remain at home with them or go out with them only. Even while making conversion with other people, she has to have an eye on the kids. Therefore, in that case, these mothers find some free time for themselves and even for work when their children either go out to play or study or when they sleep. Whereas, on the weekend day, their day is full of work because of their children or husband remain at home. Whereas in the case of third and fourth respondents, since their children have not got the proper school that is why, these mothers rarely get any free time for themselves. Mother has to be in touch with them regularly. The relationship of mother and child is too entrenched. The mother does not remain just as a mother but also as a friend and a teacher too. These mothers get time when some other women of the family support her such as grandmother or aunty who takes care of the kid when there is absence of mother for some moments. Vol. 3 , issue 27-29, July-September 2017. ISSN: 2454-2725 2. Because of lack of awareness, these families could not get the PWD Category certificate. Also to get all the procedure done or to visit hospital or school, it almost becomes impossible for their husband to go repeatedly. They cannot manage to have off from their jobs for all these days. In this situation, the mother has to visit these places with the children even if they do not go out so often. PROBLEMS ENCOUNTERED DURING THE RESEARCH 1. Nitin’s family was also my primary focus for this research. At one point of time, I felt that I have to change the topic because I saw that Nitin’s house was locked so I thought that perhaps they have shifted to their village since they are living in a worse situation here in Delhi. So, because of not having enough respondents, I was thinking to change my topic. But later, they returned and told the problem that because of small family, whenever they have some work outside so they have to go out with everyone (mother, grandmother, Nitin) since his mother does not know much. 2. Before the fieldwork, I was not very clear to me how will I distinguish the “motherhood experience of a disabled child” and the “motherhood experience of a normal child”. But I think after the interview, it was little clear to me. 3. It should also be noticed that I usually visit the places of my respondents (as we live in same area) where one can find many things for instance once I visited Nitin’s place when he had loose motions. During that time, his mother has to take him up to the washroom repeatedly. Such experiences or everyday struggle of mother of a disabled child still could not be brought out in a more detailed to this research. The reason of this may be the hierarchical structure (between the respondent and the researcher) or may be the consciousness of the interview. वर्ष 3, अंक 27-29 जुलाई-सितंबर 2017