The Beacon Issue 3 | 2019 The Beacon Issue 3 | 2019 | Page 12

A DONOR STORY
LOVE THE
SPECIAL ONES
A LETTER FROM KENNY EASTON
I’ve lived in Tulsa all my life. I Graduated from Memorial high school in
1976. My senior year I took a vo-tech class in carpentry and I loved it so
much it became my career. Because of that class I worked summers in
construction framing houses which led me to start my own company at
the age of 19. I have been in the business 40 years now.
During that 40 years I raised a family of five kids. Shannon, Lindsey,
Taylor, Ryan, and Kelly…I’m still raising Kelly. My daughter Lindsey
went to be with the Lord in 2009. Lindsey was born with a rare disorder
called POME’S disease. The doctors gave her two years to live, but my
girl was a fighter. She spent those first two years in the hospital, but we
didn’t give up. We went through a lot of red tape and finally were able
to take her home with the care of the state.
She was very special.
She lived on a ventilator all her life and was fed through a G Tube, but
that never stopped her. She developed a knack for speed reading.
She went through the school system having her classes at home, and
graduate valedictorian. That was one of the proudest moments of my
life.
When Lindsey was 18 we were told that a cure was found and the head
of the research facility asked her to cut the ribbon for the new building
in OKC. We went and were greeted by over 200 scientists from all over
the world. It was amazing. The ribbon cutting revealed the name of
the facility; The Lindsey Paige Easton Biological Research Facility. It
was named after her. This was another proud dad moment. She was
the first recipient to receive this ground breaking cure. It restored only
some muscle movement, but it increased her heart function.
Lindsey was a very giving child. Her protein medicines made her hair
grow fast. She always wanted to grow it long so she could cut it and
donate it to be used as a wig for kids with cancer. She was the biggest
inspiration in my life. Her courage and faith shaped me. She had a
good 23 years.
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