On March 8th, 2015, we were airlifted to our
neighboring island Martinique where she was
cared for for over a year.
I dropped everything -- my business and
sacrificed being a mother to my beloved son to
be by my daughter's side.
It’s not easy seeing your loved one endure such
pain. It's not easy seeing your loved one having to
take so many drugs but what can you do?
As time went by, it allowed me the opportunity to
better understand lupus.
It also allowed me to better understand my
daughter.
As a mother of a lupie it’s not easy. But I find
ways to make parenting a lupie work for me. I
treat her like the weather. When she's calm, I
keep calm. When she’s up and bubbly I do the
same. On days when she feels like shutting
everyone out I let her be.
It’s really a challenge and difficult task to live a
normal life with such condition. But as a mother
of a lupie, if I can do it, with the strength of the
Almighty, you can do it too.
"No one person will ever understand what you
are going through. Do you even know how you
do it? Or even understand how you make it
through? I made it through because of the
Almighty God above who strengthened and
directed my path."
Nisa Mathurin
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