To facilitate the development and execution of a
retention strategy, The Michael J. Fox Foundation
has created a Recruitment and Retention Toolkit.
The toolkit comprises of materials to: 1) facilitate
participation; 2) communicate study progress; 3)
express appreciation; and 4) share results. The
toolkit contains customizable templates and how-to
guides. Within the toolkit, certain materials are
patient-facing (i.e., research teams will distribute
them to individuals with PD and/or their care
partners to facilitate participation), while others
can be used with both participants and site staff
to communicate about study progress, express
appreciation and share results. For additional
information, materials in the Recruitment
and Retention Toolkit, and to start building
your retention strategy, visit michaeljfox.org/
ResourcePack.
The Michael J. Fox Foundation's Recruitment and Retention Toolkit
Educate on
Research
Participation
Generate
Study
Awareness
Guide
Through
Consent
Facilitate
Participation
Communicate
Progress &
Appreciate
Participants
Share Study
Results
Learn more at
michaeljfox.org/ResourcePack
Chapter 4
Key Takeaways
+ + Form a retention committee early in the planning process to understand
participant and site staff goals, off-ramps and touchpoints to facilitate
long-term engagement in the study.
+ + Develop a retention strategy that focuses on facilitating participation,
communicating study progress, expressing appreciation and sharing
results. Focus this strategy on study participants and site staff.
+ + Use MJFF’s Recruitment and Retention Toolkit to make it easy to plan
your retention strategy.
Chapter 4— Crafting a Retention Strategy and Toolkit
41