understand fatigue and can avoid talking about it ;
• information on coping is useful , but contact with both professionals and others with fatigue is very much valued ;
• those with lived experience did not appreciate much of the language used by professionals , and red flag words include ‘ normal ’, ‘ recovery ’ and ‘ tired ’;
• a ‘ pick and mix ’ option to manage fatigue was thought ideal , this gives the opportunity to select elements most relevant to individual circumstances ; and
• there was recognition by all that there is little research to underpin current practice .
Although running the groups via Teams was not ideal , there were advantages . It enabled a wide geographical spread of people to participate from across the UK . Some of the participants may not have been involved if they had had to travel , either because of work pressures , timing issues or physical constraints .
However , equally , although we actively included those with aphasia and those with significant disability , we realise this interface prevented some people from taking part .
The co-design groups were a real success and an excellent way to allow people to exchange experiences and perceptions . The use and input of experts – all experts – is critical in moving this and other research areas forward .
Nottingham Fatigue after Stroke study ( Paper under review )
Drummond A , Ablewhite J , Condon L , dasnair R , Jones A , Jones F , Sprigg N and Thomas S ( 2020 ) Developing a fatigue programme : Protocol for the Nottingham Fatigue after Stroke Study – NotFAST2 . British Journal of Occupational Therapy , 83 ( 11 ). 674- 679 . DOI : 10.1177 / 03080226209 44797
Drummond A , Nouri F , Ablewhite J , Condon L , das Nair R , Jones A , Jones F , Sprigg N and Thomas S ( 2021 ) Managing post-stroke fatigue : A qualitative study to explore multifaceted clinical perspectives . British Journal of Occupational Therapy . September 2021 . doi :
10.1177 / 03080226211042269
Words AVRIL DRUMMOND and JOANNE ABLEWHITE , School of Health Sciences , University of Nottingham , and FIONA JONES , St George ’ s University of London
Evidence link
Slattery et al ( 2020 ) conducted a rapid overview of reviews regarding co-design approaches and activities in health research , and what is known about effectiveness , with a focus on the study planning phase . The search elicited 3,919 records . Following de-duplication and screening 26 records ( reporting on 23 reviews ) were included , comprising systematic , scoping , narrative and other types of review . Results were narratively synthesised . Findings included many approaches to co-design that encompassed the authors ’ definition and several types of activities . The research also provided recommendations for conducting co-design . The authors identify codesign has rarely been evaluated empirically or experimentally , but qualitative evaluation has described positive and negative outcomes . They suggest that development of clearer more consistent terminology , better reporting of activities and better evaluation may be required to realise the potential of co-design .
Slattery P , Saeri AK , Bragge P ( 2020 ) Research co-design in health : a rapid overview of reviews . Health Research Policy and Systems , 18 : 17 , 1 – 13 . doi : 10.1186 / s12961-020-0528-9
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Ablewhite J , Condon L , das Nair R , Jones A , Jones F , Nouri F , Sprigg N , Thomas S , and Drummond A . UK clinical approaches to address poststroke fatigue : findings from The
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52 OTnews January 2022