Managing the Disease
Here are a few other good
sources of information
about PF and finding a local
support group to join:
Pulmonary Fibrosis
Foundation
pulmonaryfibrosis.org/
life-with-pf/support-groups
Introduction to Pulmonary
Fibrosis
American Lung Association
lung.org
Idiopathic Pulmonary
Fibrosis
National Heart, Lung and
Blood Institute
www.nhlbi.nih.gov/health-
topics/idiopathic-pulmonary-
fibrosis
Managing the different aspects of PF can be challenging. It is important
to keep your pulmonologist and health-care team up to date with your
symptoms, medications, and treatment progress. Be sure to organize and
keep copies of all medical records.
The best way to manage PF is by maintaining a healthy lifestyle. This includes:
•
•
•
•
• Quitting the use of tobacco products
• Using supplemental oxygen therapy as directed
Avoiding exposure to second-hand smoke
Engaging in regular exercise (including pulmonary rehabilitation)
Following a healthy diet
Taking all medications as prescribed
Finding Support
It is important to seek help from local and web-based support groups. This
can help to find solutions to problems and understand how others cope
with and manage their disease and symptoms. The Pulmonary Fibrosis
Foundation has a detailed website. It can be a valuable resource for
information and for finding local support groups and meetings.
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