Mélange Accessibility for All Magazine October 2021 | Page 43

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Niki & Jimmy

Disability does not interrupt their Unconditional love . Laughter . Happiness
Meet Niki
I was born in Perth , Western Australia but grew up in Bundaberg , a town in Queensland , Australia . When I was 13 , we moved to the Sunshine Coast , Queensland , Australia , with my mum and two brothers . High school wasn ' t my thing , and I left at the end of year 10 . Not long after leaving school , I fell pregnant with Jimmy and the young age of 17 years old . Jimmy was born in Nambour hospital via c-section on the 11th of April 1995 , and we had a hospital stay for about three weeks . Everything was good , but I was so young , so there were just some things I did not pick up on . His grandmother noticed that when you would hold a toy in front of his face , he would not reach for it , nor would his eyes focus on it . So I went and had Jimmy ' s eyes tested . This was when he was around two months old , and not long after is when I found out , he could not see and would never be able to see . So I did what I needed to do , and that was to be Jimmy ' s mother regardless of finding out about his disability . When Jimmy was around eight months old , he ended up in the hospital , and we found out he would be diagnosed with epilepsy . Again I just did what I needed to do . Life goes on . When he was three , I decided to try to ween him of the epilepsy medications because he hadn ' t had one in a couple of years , and everything worked out ; he never had an epileptic seizure again . On he went to a special school . Then at the age of 17 , he would be diagnosed with diabetes insipidus and panhypopituitarism .
I worked full time during his school years , but once he finished , I no longer had the support or care , so I dropped back working to only three days per week . During this time , Jimmy would have a few more seizures , and I worked out what was causing these and fixed the problem without medication .
Jimmy is now 26 years young , and I am 43 ; we both have learnt a lot and are always changing to better both ourselves . I now have more time at home with him , teaching him everyday skills and learning new skills myself . Our life has come with struggles , but we have overcome each one with our love and perseverance and determination to grow .
I have a blog that goes into more detail about where it all started the day Jimmy was born its an insight into our life ; you can find it here . www . nikiandjimmy . com