GloPID-R Roadmap for Data Sharing in PHEs | Page 36

4b. Communicate the Public Health benefits
of data sharing. Continue to publish and advo-
cate on the benefits.
GloPID-R should continue to communicate
the public health benefits of data sharing
through continued profiling and publishing
on this to influence a range of stakeholders,
including researchers, political leaders and
Public Health officials. This roadmap can
provide a framework for communicating on
GloPID-R’s impact.
RECOMMENDATION 5
STRENGTHEN SYSTEMS
5a. Support existing and expanded data
sharing platforms for priority pathogens with
agreed governance mechanisms and data
security systems.
Data platforms already exist for certain
priority pathogens. GloPID-R funders should
promote their use and expansion for further
priority pathogens with robust data-govern-
ance and equitable data ownership principles
that recognise the interests of all stakehold-
ers. Databases for such platforms could be
centralised or federated (to ensure equity).
Data platforms can certainly facilitate effective data
sharing and greatly improve transparency, however the
case studies showed that these were not currently the
main routes for data sharing. These platforms are most
likely to be successful if developed bottom up by re-
searchers in collaboration with the countries affected
by outbreaks, with funding support. Alignment between
GloPID-R funders in investment into data sharing
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platforms would likely accelerate and enhance their
development and use as well as certification.
5b. Support an overarching unified govern-
ance structure for international data sharing
within which existing platforms can be em-
bedded and through which platforms for novel
pathogens can be developed.
An overarching unified governance structure
with multilateral endorsement should be
based on all the GloPID-R principles for data
sharing. This could build legitimacy and ulti-
mately build trust. Disease specific platforms
(see 5a.) could be nested within it and the over-
arching structure would facilitate data sharing
for new, emerging and re-emerging pathogens
of PH interest.
An overarching structure for embedded disease specific
platforms would have great benefits but will take time
and resource to develop.