Branching Beyond: a new look at Month of Awareness
May is Month of Awareness! May is when we ask all SWF
members to focus on bringing information about SturgeWeber syndrome to their families and friends. Families have
always responded with enthusiasm and energy and used their
imagination to develop events and activities. Marathons
and walks have taken their place alongside bake sales and
benefits. The SWF has created opportunities like First Giving
that enable anyone to participate in fundraising by telling
their stories.
Perhaps it is time to think about raising the bar. Can you
think of how many times you encounter someone who has
never heard of Sturge-Weber? How many people do you catch
looking at your child or yourself with innocent curiosity (or
NOT looking).
By now your families and friends and neighbors probably
have a nodding acquaintance with SWS/PWB and KT
because of you. Have you shared the message at your office,
place of worship or social club?
Remember, SturgeWeber syndrome is a rare
disease, affecting a small
number of people for a
lifetime. Together we can
make a difference. Join
us to improve services
and understanding of a
birthmark many have
never heard of...yet. We
need your voice to be
heard around the world
and hope starts with you.
Please visit www.sturgeweber.org. Under the top
menu, click Get Involved
and then Awareness
Activities for specific
ideas and printable
materials like the Month
of Awareness poster on
the opposite page. Also
contact the office for
materials we have on
hand for your awareness
activities and