NEW DEVELOPMENTS AT THE ANGELMAN SYNDROME FOUNDATION
NEW DEVELOPMENTS AT THE ANGELMAN SYNDROME FOUNDATION
Angelman
Syndrome Foundation Invests $ 1.25 Million in AS Research
Due to your support, the Angelman Syndrome Foundation is able to award more than $ 1.25 million in grants for AS research this current grant cycle. This year’ s funded research will contribute to all future AS preclinical and clinical trials, helping move AS research closer to developing treatments for individuals with AS while furthering the research community’ s understanding of the complexities of AS. Thanks to you, this year’ s funded research will seek to define the optimal window for potential treatment, further understanding of varying UBE3A gene mutations and deletions, and determine if a current FDA-approved drug is a viable treatment in an AS mouse model.
participation include working with a speech pathologist and conducting quarterly assessments, among others.
ASF Biennial Conference, Your Ultimate AS Resource
The Angelman Syndrome Foundation’ s 2013 Biennial Conference, Championing Progress, will be held July 23-26 at the Walt Disney World Swan & Dolphin resort in Orlando, Florida. As a central resource for your family’ s unique needs and those of your loved one with AS, the Conference addresses all aspects of living with AS and provides the opportunity to network and learn from a variety of experts and keynote speakers, attend breakout sessions, and participate in collaborative opportunities with other families.
iPads For AS
To help individuals with AS overcome some of the challenges associated with communication, the Angelman Syndrome Foundation has launched the iPads For AS program, which provides Apple ® iPads ® for up to 100 individuals who qualify for the program. Requirements for
ASF Honors Your Investment
Due to your support and that of more than 7,000 volunteers during the last 21 years, the Angelman Syndrome Foundation has been able to:
• Provide more than 250,000 individuals with information, support and connections to resources
• Raise more than $ 12.5 million to fund research and provide direct support to individuals affected by AS
• Grant more than $ 5.8 million to more than 70 research endeavors to support a diverse set of research projects
• Hold more than 186 individual walks in 42 cities across the country that have been attended by more than 52,000 individuals
The Angelman Syndrome Foundation is honored to serve as a resource to the AS community and welcomes any individual touched by AS to contact the organization.
Thank you for your support!
The 2013 Angelman Syndrome Foundation National Walk boasted record participation with more than 11,700 individuals who, to date, have raised more than $ 1 million towards the $ 1.1 million fundraising goal. Fundraising continues through September 30. The Angelman Syndrome Foundation is deeply grateful for the time, energy and support that you and the AS community invested to raise these funds that provide direct support to individuals with AS and their families through programs, resources and networking opportunities, and that fund research that will help lead to a cure for AS.
www. Angelman. org( 800) 432-6435 Int’ l( 630) 978-4245 info @ angelman. org