Clinical Trial of Low Glycemic Index Treatment proves effective for reducing seizures by 80 – 90 %
Dr. Thibert and Dr. Elizabeth Thiele( both are members of the Scientific Advisory board for the Angelman Syndrome Foundation) were able to launch a clinical study to determine the efficacy of the Low Glycemic Index Treatment in reducing seizures in individuals with Angelman Syndrome. In July 2012 the results were in and published in Epilepsia and in the Angelman Syndrome Foundation newsletter.
Epilepsia link: http:// onlinelibrary. wiley. com / doi / 10.1111 / j. 1528-1167.2012.03537. x / abstract PubMed link: http:// www. ncbi. nlm. nih. gov / pubmed / 22779920
You can read my interview with Dr. Thibert on my blog www. MeetTheFamiliesofAS. blogspot. com
A Grandmother finds a solution for her granddaughter and all of our kids with Angelman Syndrome By Lois Carroll When my growing granddaughter, who has AS, couldn ' t be fitted with large enough bibs, I took out my sewing machine to solve the problem. I showed the resulting smock to friends, and my project, Sophie ' s Smocks, named after my granddaughter, was born so that many kids with AS could have a free smock. I buy new and gently used turtlenecks and trim. Supporters donate their time to help and their money for postage and materials to keep the project ongoing. All the smocks are FREE for individuals with AS. I have child size SMALL to adult XL. They are available to others for a donation to cover at least the postage to keep the project going. To get a smock, all you have to do is ask by emailing smocks @ cox. net. Give me your child ' s shirt size plus a name and mailing address including zip. I ' ll send one as soon as I can. There ' s no catch and no obligation. I mail around the world and free means free. You can check it out at my website: http:// loiscarrollbooks. com / indexSS. htm
Thank you, Grandma Lois Sophie ' s Smocks
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WWW. ANGELMANTODAY. COM JULY / AUGUST 2013 | Angelman Today