Angelman Today January / February edition 2014 | Page 45

Alliance agreement that states the wish to make funds available and the amount of funds which will be available per the moment the grant(s) is (are) awarded. Then the scientific advisory board sets up a call in which they include the most important cornerstones on research. The first stage of application period starts: application by sending in two-pagers on research ideas. Then the second stage of application period starts: on the basis of the aforementioned assessment the European scientific advisory board invites one or more applications to send in a more detailed application. Eventually those detailed applications endure assessment by the scientific advisory board and they draw-up a ranking of the applications which are eligible for funding. Now the participating parent organizations come in play and decide which of the ranked research projects are awarded a grant. And then we draw-up separate funding agreements between the relevant researchers and each of the participating parent organizations with respect to their part of the funds connected with the awarded grant. The funding goes from the parent organization directly to the scientist. There is no bank account in between to park all funding from participating countries. Whom does what The parent organizations keep everyone in their country informed and pays their part of the funding to the scientist. WWW.ANGELMANTODAY.COM The scientific board is in charge of the calls, assessments, reports and evaluations. The NF does most of the work necessary like communication between parties, administration and reports. Here we go, Paris October 2014 The next meeting is in Paris 2014, October. Have a look at the ir website for more information. They also ask for financial help in organizing the event. Perhaps you can think about this? In Paris the scientific call for projects will have selected a few scientists to give a presentation to the group about their idea. What can you do? After reading this, you might get exited and wanting to help. And you can! You can join, donate or fund raise, there are countless ways you can help. If you need ideas please contact the parent organization in your country or the Nina Foundation. For legal information on the alliance you can directly get information from Martijn van Steensel who works at the legal firm Loyens & Loeff. They handle, on a completely voluntary basis, all the legal work and donations to the Nina Foundation. Mail [email protected] ask for the Alliance Agreement (in English) and you can mail us all your questions. We are united ;-) and more countries are welcome to join. Wish you a great 2014. Super exiting! January / February 2014