The Voice Issue 7, Summer 2013 | Page 21

that would be able to offer the support and training they need to help them to go on living as a couple? Even just having someone to talk to would help…“ Su Whibberley A Straightaway, Lesley was able to put us in touch with the CNS Head and Neck Nurse in that region, and we’ve arranged for her to speak with Mrs Whibberley’s neighbours. Lesley was also able to pass on some more general advice for anyone facing this kind of situation. “First, we assess the patient’s ability to provide some care himself, with help from his family. Only if they’re unable to self-care, would we recommend a nursing home as the safest option. Instead, we prefer, whenever possible, to get the patients home with the support of the District Nurses. It starts with education on the ward. We speak to the family to ensure they can provide the necessary level of support. They have to understand that they will be the main carers (with support from the District Nurses). They’ll also need to think about the kind of impact this will have on their life. Provided everyone is happy with the situation, we invite the District Nurses in to the ward for a teaching session and check to see if they have any concerns before going on to provide ongoing tracheostomy care, including tube changes and general care.” We know from our readers that, with the support of District Nurses and local groups, you can do it. You can look after your loved one at home; you can both live the life you want – and it does get easier. ? Summer 2013 | THE VOICE 21