that would be able to offer the
support and training they need
to help them to go on living as a
couple? Even just having someone
to talk to would help…“
Su Whibberley
A
Straightaway, Lesley was able
to put us in touch with the CNS
Head and Neck Nurse in that
region, and we’ve arranged
for her to speak with Mrs
Whibberley’s neighbours.
Lesley was also able to pass
on some more general advice
for anyone facing this kind of
situation.
“First, we assess the patient’s
ability to provide some care
himself, with help from his
family. Only if they’re unable
to self-care, would we
recommend a nursing home
as the safest option. Instead,
we prefer, whenever possible,
to get the patients home with
the support of the District
Nurses.
It starts with education on the
ward. We speak to the family
to ensure they can provide
the necessary level of support.
They have to understand
that they will be the main
carers (with support from the
District Nurses). They’ll also
need to think about the kind
of impact this will have on
their life.
Provided everyone is happy
with the situation, we invite
the District Nurses in to the
ward for a teaching session
and check to see if they
have any concerns before
going on to provide ongoing
tracheostomy care, including
tube changes and general
care.”
We know from our readers that,
with the support of District
Nurses and local groups, you
can do it. You can look after your
loved one at home; you can both
live the life you want – and it
does get easier. ?
Summer 2013 | THE VOICE
21