The SpecialMoms Parenting Magazine 2nd Issue | Page 32

Katrina Moody
books together; he’s into zombies now, but loves
most super heroes - and his helpful spirit will
make you think he’s older than his years.
Logan is my mischievous little guy - he’s
discovering his words and in LOVE with most
theme songs. His giggle will make your day and
melt your heart, too.

Share with us the diagnosis of your
children with special needs. How did
you find out?
My guys have a lot of diagnoses, but the most
important is awesomeness - because it’s the one
I gave them and it describes them best: They are
all awesome and unique.
But that awesomeness = a LOT of different
diagnoses around here. My husband and three
sons all share the same rare genetic disorder,
called Axenfeld-Rieger Syndrome. Along with
ARS they are all autistic as well.
My guys have varying other diagnoses, some
because of the ARS and others perhaps due
to being preemies (Andy and Logan were 33
weekers) or maybe just because they needed to
be that awesome.
Each kid and their diagnoses:
Bobby - ARS, Epilepsy, Autism, VI (Visual
Impairment - he’s legally blind)
Andy - ARS, Autism, Dyslexia, other LD
Logan - ARS, Epilepsy, Autism, VI (also legally
blind), Cerebral Palsy
I know there are other diagnoses that have fallen
by the wayside over the years and others I think
are a bit of overkill - like ADHD.

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What is the most rewarding thing about
being the mother of a special needs
child?
You learn to appreciate the little things that are
so easy to take for granted otherwise - a laugh,
a smile, taking a step, saying “I Love You” … all
things my guys have fought to be able to do.

Briefly explain to us about your business
and why you decided to it?
I run my own online business, providing
WordPress
designs,
customizations,
maintenance and tweaking, along with graphic
design. I started out by writing freelance and still
love to write. I think it’s imperative for special
needs parents, for caregivers, to have something
they can be passionate about which is outside of
being just a caregiver.
I do still hope to form “The Rarelink” - an
organization that specifically helps parents of
kids with rare disorders make connections and
find/give support to one another. It’s my dream
- so … someday.

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