The SpecialMoms Parenting Magazine 1st Issue | Page 38

Be sure to follow us Interview Share with us the diagnosis of your child with special needs, how did you find out? Coming to the realization that Katey had autism was a journey! During the time that she was a toddler, we were also full-time, live-in caregivers I owe so much of my personal growth to my daughter. I love both of my daughter’s dearly! Briefly explain to us about your business/charity and why you decided to it? to my grandmother, Granga, who had dementia. The idea of creating illustrative picture cue Caring for my Granga took up so much of my cards for the use of persons with Alzheimer’s and time and focus, that I missed clues that I probably dementia came about from my experiences while should have seen. Katey was our first born, so caring for my grandparents and understanding we had no “guideline”, if you would, to measure how Picture Exchange Communication System developmental (PECS) worked for my daughter. milestones against, anyways. After Granga passed away and I had more time with Katey, I did notice that her “Kateyisms”, and I don’t know if many of you have been around delays in speech needed to be addressed. We or had loved one’s with dementia, but I can tell brought it up to the pediatrician at her 2 year you, the similarities with verbal processing, anxiety, old appointment, but the pediatrician dismissed frustrations, behaviors, and the strength in visual it. At three years, the pediatrician listened, and and non-verbal communication are amazing. noted that she had autism. Katey attended early intervention at the age of 3 and attends special education and transitions into mainstream classes. She’s now in the 3rd Grade and has blossomed so well, and works so hard with her speech and social cues. We know there is still a journey to be had, but are so proud of her accomplishments. What is the most rewarding thing about being the mother of a special needs child? I don’t know if Katey will ever truly understand how important she is, and what her life has done, already to impact the world! I don’t say this, as if she can’t understand, because I know she does, I say this because mere words on paper, or spoken, When verbal communication failed or became difficult I saw the strength in visual communication. Why? Because visual is easier for the brain to process; it’s less confusing. In other words, it’s important to “reduce the thinking to get the message across”. This is particularly important for communicating with people with dementia as their brain is damaged and grossly impaired as the disease progresses. I want the world to understand that we need to NOT focus on what is changed or lost, let’s work with what we have; let’s work in their world. What advice can you offer to other mothers who are looking to start a business or charity? cannot convey the true admiration, love, respect There are two points of advice that I value as a and awe that I owe my daughter. She has taught “mompreneur”. me so much patience, kindness, trust, faith, and 1. Ask for help! Seriously! I cannot stress this love, that I didn’t know one person could possess. enough. You’d be surprised at how many people 38  The SpecialMoms magazine ~ Winter 2014