The SpecialMoms Parenting Magazine 1st Issue | Page 23
Be sure to follow us
Sticky Icky Booger Bugs
A day in the life of a young boy living with Cystic Fibrosis
Tell us about your family
(other children, ages, hobbies):
I have 3 boys-Kyle (20), Kevin (15), Kory (11), and
a grandbaby named Lacey Ann. All three boys
have their fair share of medical conditions. All
three were diagnosed with Arrhythmogenic Right
Ventricular Dysplasia (ARVD) in 2010.
The older
two have pacemakers and Kory will soon be
having surgery for his pacemaker. Kevin and Kory
were both diagnosed with Cystic Fibrosis when
they were younger.
Our day usually revolves
around treatments and there sporting events.
Share with us the diagnosis of your
child with special needs, how did
you find out?
Kory first complication was when he was two,
his blood sugar dropped dangerously low. His
pancreatic ducts were clogged. After two years
of testing, multiple of doctors, and a genetic test
confirmed cystic fibrosis.
Sherry Firth
Bakersfield, CA
http://beatsnot.com
http://beatsnot.com
Winter 2014 ~ The SpecialMoms magazine 23