The SpecialMoms Parenting Magazine 1st Issue | Page 19

Be sure to follow us

Advocates Corner
bedroom and throughout the house, and will be

So, even though she “looks” healthy and she’s

one level in the event she experiences muscle

heading in the right direction we’re not stopping

weakness or deterioration. When she starts school

until there’s a CURE.

we’ll need to make sure her desk isn’t too close
to the windows in her classroom, that she and her
teacher understand the importance of proper
sunscreen application, and that we’re made
aware of any viruses affecting the students.
As for now, we’re sad for the day when the
neighborhood children ask if she wants to come
out and play and we have to calculate the risk,
take precaution, monitor the clock and bring
her back in before she’s ready. We know this day
is coming because we spend at least a day or
two a week consoling her as she peeks out the
window watching the other kids play. It breaks our
hearts and we don’t even kno