The New Social Worker Vol. 20, No. 2, Spring 2013 | Page 11

and other professionals, so they can successfully assist patients in the transition. To successfully transition, patients need consistent and specific support from their doctors, nurses, social workers, and any other components of their professional support team. Patients can receive the much needed support during this adjustment period from survivorship services offered by professionals. That being said, there is an ever-growing need for cancer treatment centers to offer services specific for survivors and promote sustainable changes in the services available. Survivors can face unique psychological challenges along the way. Fear of recurrence is very common among survivors, and minor physical problems can often trigger the feeling that the cancer has returned. For patients, knowing what is “normal” and what should be reported to a doctor can be difficult. Typically this fear lessens over time; however, certain events such as a diagnosis anniversary or follow-up exams can heighten anxiety. For some survivors, the feeling of uncertainty can become overwhelming and lead to struggles with depression and anxiety. They may also struggle with feelings of anger, isolation, guilt, and low self-esteem. Support groups and counseling can help survivors cope with these and other difficult emotions. Treatment consists of specific physical problems and challenges, even after treatment. Different treatments cause different side effects, and patients may experience them in their own way. In particular, such side effects as fatigue, changes in skin texture, or nerve changes in the fingers or toes (also known as neuropathy) can take months to heal. Some side effects can even be permanent and require lifelong management. They can even show up months or years later, and these are known as late effects. Treatment can also exacerbate existing conditions, such as diabetes or heart disease. It is also common for some survivors to have a part of their body surgically altered or removed as a part of treatment. To cope with any side effects and maximize physical abilities, providers should offer a wide range of supportive care and rehabilitation services. Coping with the lifelong challenges around sexual function and reproduction that remain long after the cancer is gone can bring about difficult emotions for patients. As a result of physical or emotional changes, patients may find it difficult to be intimate with someone. Treatment can also cause infertility in both men and women, and no longer being able to produce a child can bring about feelings of anger and grief. Giving patients all of their options regarding preservation of reproductive tissues, breasts, or genitals and effectively preparing them for any possible losses is critical for a successful transition into survivorship. Cancer has an impact not only on the survivor but also on his or her relationships and support system. Patients can feel alone and isolated, and so become alienated from others. Cancer changes how people relate to one another; some people become closer, while others become much more distant. Families can become overprotective, or they can feel like they have exhausted their ability to be supportive. Support post-treatment can often be much different from what a patient hoped for or expected. In addition, relationship challenges that were put on hold during treatment can resurface. Offering counseling and similar services can assist a survivor in recognizing and working through these changes, and ensure they get the support they need. Returning to work can be a sign of a patient regaining a sense of a “normal” routine and lifestyle, and most survivors need their employment to survive. Although survivors can be just as productive as they were prior to treatment, many often feel they are treated differently or unfairly and are fearful of asking for extra accommodations if needed. There is a lot of apprehension and embarrassment when survivors return to work and feel that coworkers may view them as less able. However, information is available to help patients transition back into the workforce, and there are laws and regulations that prohibit discrimination, such as the Americans with Disabilities Act. Key players in avoiding discrimination and advocating for the client include the employer’s human resources representative and an oncology social worker. Financial challenges go hand in hand with returning or even not returning to work, as the cost of cancer can be exponentially high. Even patients who are fortunate enough to have health insurance are left with costs that accrue quickly. Often, survivors have already lost income because they were not able to work as much or at all during treat- ment, making it difficult to pay both medical and household bills. It is a critical part in the role of the oncology social worker or patient navigator to connect patients with national and local organizations that offer financial information, advice, and support. Spirituality can be a critical part of coping and healing throughout the cancer experience. Many survivors struggle with questions of why they had cancer or why they survived. For some, spirituality and faith are sources of comfort and strength. Others may find themselves examining long-held beliefs or religious values as they try to make sense of their experience and find new meaning in life. There can often be a lot of anger and resentment, even a sense that they have been betrayed by their faith. Patients who did not have strong religious or spiritual beliefs beforehand may have new questions or be confused about what these issues mean to them now. 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