The Mobile Rundown 2020 - Page 6

  Story and Mission FOUNDATION 328 O n March 28, 2018, Aubreigh Nicholas turned 11 years old. But this birthday would be like no other. On this birthday she was battling a terrible monster called DIPG, a terminal brain cancer that ultimately made this her last birthday. She had already been instrumental in bringing her whole community together to pray each day at 3:28 pm for her. But she wanted more. So on March 28, 2018, in true Aubreigh style, she taught us that when life brings you lemons, you make LEMONADE! She created the Lemon Face Challenge, bringing awareness across the globe to DIPG, a fatal pediatric brain tumor. She first challenged Nick Saban, Alabama Crimson Tide’s head football coach, who obliged by performing the lemon face challenge. This was followed by other coaches including Clemson’s head coach, Dabo Sweeney. Across the globe, the challenge continued, including the LA Dodgers, Arizona Diamondbacks, Good Morning Britain, and morning shows in Korea. To date, the lemon face challenge continues in Australia and many other places. All started by a little girl with a big heart from Mobile, Alabama. Aubreigh Nicholas was a fierce fighter who taught her family, community, and other parts of the world to never give up, no matter what you may be facing. On September 12, 2017 she was diagnosed with the unimaginable, Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a rare and fatal pediatric brain issue. Only 4% of federal government cancer research funding goes to study pediatric cancer. If more than 4% was given to childhood cancer, more trials could have been available. More trials equate to a step closer to finding a cure. More funding can help off-study medications be given at a lower dose. As it stands now, high dose off-study medication outcomes and side-effects are too risky to perform without the strict guidelines of a clinical trial. More money for research is needed!! tumor. Aubreigh began six weeks of radiation two weeks after diagnosis. The only HOPE for a child upon diagnosis is to be accepted into a trial and HOPE that it’s the cure or, at the very least, gives you more TIME. There are not many trial locations for DIPG patients in the United States. Being accepted into a trial is also not an easy task. Aubreigh was accepted into a trial at Sloan Kettering Hospital in New York in January 2018. Unfortunately, upon arrival to the hospital to start treatment, Aubreigh’s new MRI showed too much necrosis from the radiation, therefore she was no longer eligible for the trial. After many sleepless nights, her parents took a chance on another trial at Maryland’s National Institute of Health. The trial took too long to open, and Aubreigh’s tumor began to grow. TIME is not an option that any child with DIPG has. Options were close to non-existent and travel became an Our Upcoming Events March 28, 2020 Battle For a Cure Baseball Tournament Hosted by GSSA Sports Christmas Toy Drive 6 Get out and #DoSomeGood in 2020! When Aubreigh lost her battle on August 15, 2018 after 11 months, her parents were asked what they wanted her legacy to be. The only answer they have is to continue the legacy she started and to help find treatments that will ultimately lead to a cure from this monster called DIPG. Aubreigh’s Army Foundation 328, Inc. is committed to providing funding to help find a cure for DIPG and to help newly DIPG-diagnosed families in need. Her parents know too well how terrifying it is to be faced with this diagnosis. Hopefully one day, Aubreigh’s Army Foundation 328, Inc. can help change the ending that so many families have faced. Aubreigh started her fight, our fight, and now we must help her END IT!!! Donate Please visit the website, and click on the donate tab at the top. Contact Us P.O. Box 8154, Mobile, Alabama 36689 @aubreighsarmy Board of Directors Brooke Nicholas Executive Director/Founder Jayson Nicholas President Liberty Freeman Vice President Keith Graham, CPA Treasurer Christy Ruffin - Secretary Jennifer Shirley - Marketing & Board Member Teresa Bonner Board Member Dr. Felicia Wilson, MD Medical Advisor