The Hub March 2015 | Page 11

Now retired, Ives-Acton began her lengthy adventure with what was ultimately diagnosed as fibromyalgia in the early 1980s - before it had a name or was recognized as a condition. It wasn’t until 1990 that the American College of Rheumatology laid out guidelines for diagnosing fibromyalgia. The easiest way to explain fibromyalgia is in relation to arthritis, a disorder people are much more familiar with. Arthritis exists in your joints - fibromyalgia can be likened to arthritis of your muscles. “In some ways it (the diagnosis) has been very helpful…and then there’s the pain,” said Ives-Acton. Finding ways to manage that pain, and the other challenges of fibromylagia became an important part of her journey. Ives-Acton h