The Fox Focus Spring/Summer 2018

TAKING PARKINSON’S PUBLIC POLICY TO WASHINGTON on page 10 FOCUS O N PA R K I N S O N ’ S Foundation Releases Parkinson’s Clinical Trial Companion Educational Resource Multimedia Suite Aims to Help Increase Flow of Volunteers into Studies by MICHAEL J. FOX FOUNDATION STAFF When Dan Kinel, 48, was diagnosed with Parkinson’s disease (PD) nearly five years ago, clinical trials were nowhere on his radar. Several months after his diagnosis, the husband, father of two and lawyer from Rochester, New York found himself staying at the same hotel where The Michael J. Fox Foundation (MJFF) was hosting its first clinical trial fair. He decided to stop by and, to his surprise, ended up signing up for a trial. Since, Dan has taken part in more than 15 studies, including several using technology to connect researchers and patients. “I find them empowering,” he says. “I’m participating directly in finding a cure. Maybe I’m helping myself, but I’m also helping my kids or their kids down the line.” Dan is one of eight people with Parkinson’s who are featured in the Parkinson’s Clinical Trial Companion, a multimedia educational suite for people with PD and their loved ones interested in participating in research. Released by MJFF in April, it includes a downloadable book and videos highlighting (continued on page 2) In This Issue 3 6 12 21 A Genetics Revolution in Parkinson’s Research Spring/Summer 2018 Research Briefs Dr. Dolhun Talks Gut and Parkinson’s Team Fox: Kids and Teens Help Speed a Cure Spring/Summer 2018 THE FOX