The Fox Focus Fall/Winter 2018 | Page 7

Research What we're funding now: DBS REGISTRY AIMS TO IMPROVE TREATMENT OPTIONS by KRISHNA KNABE DEEP BRAIN STIMULATION (DBS) is the most common surgical treatment for Parkinson’s disease. It involves placing electrodes into specific areas of the brain involved in motor function, and delivering electrical pulses to decrease motor symptoms. DBS was first approved by the FDA in 1997 for Parkinson’s tremor. Since then, research has led to expanded uses of DBS for more Parkinson’s patients with a wider range of symptoms. And The Michael J. Fox Foundation is committed to supporting continued research to determine which patients are most likely to benefit from this therapy. DBS works better than another for certain kinds of patients or symptoms. Another goal is to define the “window of opportunity” to determine when’s the best time to have DBS surgery, and the most effective and cost-efficient procedure for DBS electrode placement. Because some patients can reduce their medication after having surgery, the team will examine how long the therapeutic benefit of DBS lasts and what factors inform future medication adjustment. They also hope to define an optimal course of pre- and post-surgery care that can reduce the risks of DBS surgery. And finally, they will look at whether DBS reduces long-term costs associated with the disease and if there are any disparities in outcomes between patients who receive DBS. The Foundation began funding the Registry for the Advancement of Deep Brain Stimulation Therapy in Parkinson’s Disease at Baylor College of Medicine in 2016 and approved additional support this year. DBS has been evolving due to new devices, surgical methods, and approvals for use in earlier stage Parkinson’s patients. And it’s important to examine the impact of these changes. Together, this information can help doctors understand the factors that predict the most positive patient outcomes after DBS surgery, and determine the right pre-operative testing protocols to select DBS candidates. While this study is no longer enrolling volunteers, many others are. Visit foxtrialfinder.org to learn more. Joohi Jimenez-Shahed, MD, who is leading the project at Baylor, explains: “As a neurologist, I am always striving to provide patients with the highest-quality care, but we need to understand what strategies work best for different groups of patients. Insights from the DBS Registry will empower health care practitioners involved in DBS therapy to ensure our patients have the best possi ble treatment outcomes.” "Ask the PhD": Your Guide to MJFF-funded Research Dr. Jimenez-Shahed and her team will collect data from patients on their experiences with DBS to answer key questions. They want to understand if any of the three FDA-approved brain targets for Watch our staff PhDs break down Parkinson’s research, from the latest MJFF-funded studies to recent scientific advances in our new “Ask the PhD” video series. michaeljfox.org/ask-the-phd. This project is generously funded in part by the Parkinson’s Alliance and the Parkinson's Unity Walk. 7 Fall/Winter 2018