The Fox Focus Fall/Winter 2015 | Page 16

THE FOX FOCUS... ON THE COMMUNITY GREAT SCOTT! Join MJFF, the PD community and Back to The Future fans in celebrating the trilogy’s 30th anniversary and supporting critical Parkinson’s research. Visit teamfox.org/ events and search “Back to the Future” or by state for local events. Start your own puffer vest photo contest or Cubs victory party and fundraise for Team Fox. Join in the fun on social media with Back to the Future stars Christopher Lloyd, Michael J. Fox and Lea Thompson reunite at the 2015 London Comic Con #BTTF2015 WE HAVE ONE GOAL: CURE PARKINSON’S DISEASE. Help us make this a reality. Your contribution brings us one step closer to a cure. GIVE TO MJFF TODAY A Future Without Parkinson’s continued from page 1 › But that’s just the tip of the iceberg — across the entire Parkinson’s research field, tremendous advances are pushing better 16 THE FOX FOCUS treatments and a cure closer to pharmacy shelves. Read on to learn more about the patients, families, researchers and committed supporters powering us toward a future without Parkinson’s disease. Kickin’ Up His Heels for Parkinson’s Research by cheryl blowers Q uentin Dastugue is a chief executive officer, retired public servant, loving husband and a proud father of three adult daughters. Yet six years ago, when he received a diagnosis of Parkinson’s disease, he found himself at a loss. But only momentarily. Quentin and Penny, his wife of more than 30 years, knew they had to form a new and active plan. Quentin has since extended his leadership to The Michael J. Fox Foundation and the Parkinson’s community at large, hosting a $300,000 (and growing) Team Fox fundraiser and serving on the Foundation’s Patient Council. Quentin’s first step was to research and apply for clinical trials, while learning as much about PD as possible. He realized that with 60,000 new cases of PD diagnosed each year in the United States, he could play a vital role in empowering his fellow PD patients and their families — and speeding a cure. When he found The Michael J. Fox Foundation (MJFF), it immediately clicked. “[The Foundation was] the most progressive in driving research,” he said. Energized by his experiences with MJFF, he took his next step: joining Team Fox and launching a fundraiser. It began as a local race at a fitness and lifestyle club, but Quentin realized that it needed a preparty. So Kickin’ Parkinson’s was born. A small party in its first year, the event has since grown to involve a 28-person committee. They work together throughout the year to host the Kickin’ party and Quentin Dastugue with (clockwise from left) daughters Allison, Margaux and Kaitlin, wife Penny and pets Roxy and Roux concert, which includes an auction and food festival, followed by the race the next day. In 2015, they aim to host 500 guests and raise another $300,000. Quentin’s family has rallied around him. Penny serves as his right-hand woman in a new way, leading the Kickin’ Parkinson’s committee and facilitating the event’s growth year after year. Their daughters Kaitlin and Margaux have taped videos to support their father and the event. And in 2014, daughter Allison, led a Pancakes for Parkinson’s event at her university. Quentin has also quickly become a catalyst for the PD community throughout Louisiana, sharing the latest research updates and opportunities for clinical trials. His involvement with the Patient Council, he says, has enhanced his ability to educate patients and their loved ones. Quentin has spoken with support groups throughout the state, often counsels newly diagnosed patients and helps people connect with critical resources to help them maximize their care. Quentin’s call to action for PD patients and their loved ones: “Don’t be disillusioned by the diagnosis. Everyone is given a challenge in life. And if we stand together, we make progress toward our goal of a cure.” FALL/WINTER 2015 17