Fall / Winter 2022 | Research 7
Study Aims to Engage Asian Americans in Research Studies
In an effort to make research more inclusive and ensure the development of therapies that will benefit everyone living with PD , Tufts University researchers with MJFF support will explore barriers and motivators that Asian Americans face in accessing care and participating in research studies . The team also aims to develop culturally appropriate programs and resources . More inclusive research and care practices can improve outcomes for underrepresented populations and lead to findings that may benefit a broader Parkinson ’ s population . This study is one in a growing portfolio from the Foundation exploring and mitigating factors that hinder inclusive research .
People with Parkinson ’ s Share Views on Advanced Disease Treatments
In order to clarify the most important needs and treatment preferences of the Parkinson ’ s community , health consulting firm RTI Health Solutions is examining the Parkinson ’ s community ’ s opinions on invasive treatments addressing the motor problems of advanced disease . These options include levodopa / carbidopa gel infused in the small intestine , deep brain stimulation and focused ultrasound . The study — funded by MJFF — aims to inform industry and health care providers of preferences around these types of treatments . That information may guide study investment and design decisions , as well as treatment recommendations .