Fox Focus I Spring / Summer 2021
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Ned Neuhaus and Claudia Revilla , a MJFF Patient Council member , have connected over their shared experiences .
“ You ’ re going to feel a lot better about your Parkinson ’ s journey knowing that you ’ ve got somebody to share it with .” — Ned Neuhaus
comparing notes and talking through how to approach the big decision we ’ re both trying to make ,” he says .
For Kathy Holden , a member of MJFF ’ s Patient Council who was diagnosed with PD a decade ago , the Buddy Network allows her to share knowledge with others who are newer to the disease . Through open discussion and one-onone conversation , the Buddy Network “ puts you right in the mix of people who want to help or need help ,” says Kathy . “ These types of connections are a lifeline for many , and this is an amazing tool for those who are newly diagnosed and beyond .”
Besides the Buddy Network , the Foundation offers many paths to interact with the Parkinson ’ s community , encompassing different interests and comfort levels . This includes participating in research , advocating for Parkinson ’ s-related policies , fundraising and learning about the latest advances . While each of these activities on their own is gratifying , they can also lead to new contacts and a broader support system .