Fox Focus I PPMI Special Edition 5
For study participants like MJFF CEO and Co-Founder Debi Brooks , who serves as a control volunteer , “ seeing and hearing directly from drug makers how this information is helping design trials and identify the right patients to be recruiting into different treatment trials is empowering .”
Other studies to better understand brain disease — not directly test an intervention — have taken their cues from PPMI as well . The study has written the manual on how to collect , store and analyze Parkinson ’ s data , growing a harmonized base that is allowing scientists to look across studies to test each theory and look for unforeseen connections that will point to cures .
PPMI is a study for the ages . Already science is closer to cures than ever before , and , with PPMI ’ s foresight , soon trials will begin to stop the disease ahead of time : before any impact on function or families .
Who Should Join PPMI ? You !
The study is looking to enroll :
+ people with recently diagnosed Parkinson ’ s , including those with genetic mutations linked to the disease ;
+ people who do not have Parkinson ’ s but are living with certain PD risk factors ( e . g ., family history , genetic mutations , sleep disorder );
+ and people without Parkinson ’ s and without known risk factors to act as control volunteers .
In addition , anyone over the age of 18 in the United States can join PPMI to provide data online .
Visit PPMIonline . org to get started .