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Fox Focus | Fox Insight
Fox Insight Brings
Research to You,
at Home
When it comes to understanding Parkinson’s
disease (PD) and prioritizing patient needs,
it’s vital to integrate the perspectives of people
living with the disease. When Michael J. Fox
launched the Foundation in 2000, he had
a vision to bring people living with PD and
researchers together into a two-way dialogue.
Today, nearly 50,000 people — with and
without Parkinson’s disease — are realizing
that vision by contributing their experiences
in Fox Insight (foxinsight.org), The Michael J.
Fox Foundation’s (MJFF) online clinical study.
Study participants share information on health,
disease and lifestyle from the comfort of their
own homes through regular online surveys.
“Each person’s story creates a moving picture
of Parkinson’s,” says Gloria Garcia, Fox Insight
volunteer, of California. “Scientists need to
know how our health changes over time, and
the moments in between those changes. That’s
why I participate in Fox Insight. We all really
are contributing and making a difference.”
Data collected through Fox Insight is
de-identified to protect individual privacy
and made available to qualified researchers
through the Fox Insight Data Exploration
Network, known as Fox DEN. The data set
available in Fox DEN, which is now the largest
of its kind, is providing researchers with vital
information to help develop new and better
treatments for Parkinson’s disease.
What We’re Learning
In addition to sharing general information about
Parkinson’s over time, Fox Insight volunteers
also receive invitations from researchers to
answer surveys focused on specific aspects of
the disease. Researchers recently deployed a
a survey on COVID-19 to better understand
how the coronavirus is affecting people with
Parkinson’s. And two recent surveys in Fox
Insight — on the use of medical cannabis
and mindfulness strategies, respectively
— are helping us identify gaps in care and
crystallizing a research agenda into these
therapeutic options.
Power Parkinson’s Research
Right now, more than ever, we have an opportunity to make real strides toward developing new
breakthrough treatments and addressing patients’ greatest needs. You can make a difference
without leaving home. Join Fox Insight and add your unique experiences to our growing
community at foxinsight.org.