Kirsty’s update …
As at 18 June Kirsty wrote this on her blog:
Today is my 39th birthday! I'm +41 days post transplant. I am
still feeling fantastic! My energy levels are unbelievable and
my mind is so sharp. If recovery is a rollercoaster, I'm still
queuing for the ride The early improvements I experienced
continue, with the disappearance of photosensitivity, optic
neuritis, migraine, vertigo, numb feet, painful joints,
clumsiness, disturbed sleep, brain fog, fatigue, bowel and
bladder disturbances, swallow reflex. AND THEY ARE STILL
ABSENT!
I feel better than I have since I experienced my first MS
symptoms aged 23! A decade ago, the MS diagnosis
devastated my life, and made life very hard for those who
love me. I pushed people away and rejected some who
cared about me. I was raging against the diagnosis, behaved
badly and was cruel to people. I think I was mentally in a
crisis feeling in utter turmoil. Three years after that,
Rheumatoid Arthritis tore through my body and I was
temporarily helpless, bed bound and nearly lost everything.
I will never be able to forget living in daily terror of 'The Next
Relapse'. I'm still not daring to look more than one day
ahead; old coping habits die hard. I still, when I first wake up,
have to take a moment to find the courage to open my eyes
for the first time that day, to find out if my eyes are working or
not. Maybe I'll never be able to stop doing that. But, that's
okay.
Living with chronic illness keeps you humble. It keeps you
focused on what things and who really matters. And today,
what matters is, I feel well! I am so blessed to be surrounded
by my four beautiful children, and Bryan.
The future is tomorrow. Today is what is important