The Catalyst Issue 24 | May 2016 | Page 18

HEART TRANSPLANT: MORE CARE OPTIONS FOR PATIENTS WITH HEART FAILURE For patients in severe stages of heart failure or other serious cardiovascular conditions, heart transplantation may be an option. The heart transplant program is another part of the comprehensive care delivered by the Scott & White Heart and Vascular Institute. Since 2010, 40 heart transplants have been performed at Scott & White Memorial Hospital. Patients whose heart disease has progressed into American Heart Association (AHA) stage D are potential candidates for heart transplant. These patients have irreversible heart damage that severely limits their life span and ability to perform extended activity of daily living. Because not all patients with terminal heart disease are candidates for transplant, it is important to limit the procedure to those seriously ill patients who stand a reasonable chance of long-term survival. Examples of diseases include coronary heart disease, congenital heart defects, or cardiomyopathy. All potential candidates may be referred to the program by their specialist, primary care physician, or by self-referral. If there are no contraindications based on the initial review, an initial consult appointment is scheduled with the transplant team. Information about the overall process including the evaluation, waiting list, surgical procedures, risks, post-transplant follow up period, and transplant center specific information are provided to the potential recipient. After completing the evaluation, the patient and the clinical findings will be discussed at the multidisciplinary patient transplant selection committee meeting which includes cardiologists, surgeons, social workers, nutritionists, nurses, and many other medical specialists involved in the care of the patient. The team considers medical, psychosocial and ethical factors when making selection decisions. Once a patient is approved for a transplant they will be added to the United Network for Organ Sharing (UNOS) list. Patients will then be matched with donors based upon blood group, degree of medical urgency, geographic location and age. Transplant candidates wait an average of five months for a heart. During this period their care team stays involved to keep them as healthy as possible in preparation for their new heart. After the transplantation procedure the patient will stay in the hospital for approximately two weeks after surgery. The care team will monitor the patient to ensure the new heart remains strong and the body does not reject it. After the patient leaves the hospital they continue to stay in close contact with members of their care team and they will take anti-rejection drugs will for the rest of their lives. While most patients suffering from heart disease can be treated by less invasive procedures at the Advanced Heart Failure Clinic, transplantation offers one more option to help the heart patient gain a higher quality and longer life. A LOOK BACK The Advanced Heart Failure Clinic was established in 2010 at the same time that heart transplantation and LVAD surgery came to the Scott & White Clinic in Temple. Those procedures allowed the clinic to offer the full spectrum of heart failure therapies. Dr. Scott had been part of the clinic since its inception and recalls how heart failure treatment has evolved since he joined the staff at Scott & White in 1999. “We went from an initial clinic that solely treated symptoms with diuretic-type medicines to these therapies that not only make patients feel better but help them live longer,” he says. 18 THE CATALYST May 16 | sw.org “Having all these experts and resources in the healthcare system allows patients to get the same quality of care no matter which location they go to. That really doesn’t exist in a lot of other places.” no longer able to do that, and I’m very unhappy. Life isn’t meaning a whole lot unless I’m able to do this.’” The patient by now has become very weak, says Dr. Sai-Sudhakar. “At that point the patient is unable to do anything at all and is practically moribund.” In addition to advanced therapies, communication between patients and caregivers is vitally important. While the clinic offers cutting-edge medicine, technology, and surgical therapies by talented caregivers, treating heart failure begins with communication between the healthcare team and the patient. “Our approach to patients is to educate them thoroughly because it is a lifelong illness for most of them,” Mrs. Day says. “It’s similar to diabetes. It’s something that every day you’re going to have to monitor and make smart decisions.” A collaborative approach It gives many families peace of mind to know that the care they receive at the Advanced Heart Failure Clinic isn’t just excellent, it’s collaborative with many caregivers working together to optimize each patient’s experience, with input from their loved ones. A cardiothoracic surgeon meets with the patient and the cardiologist, and this sort of consultation makes the Advanced Heart Failure Clinic at Scott & White Clinic in Temple, part of the Heart and Vascular Institute, stand apart, says Jacki LaFerriere, director of operations at the clinic. “I don’t know a lot of places that have a The Advanced Heart Failure team: (Back row) Emmanuel A. Amulraj, MD; Tammy Abbott; Jacki LaFerriere; Nance Conney; Lazaros A. Nikolaidis, MD; Teresa Harvatin, NP; Jennifer Day, NP; Jennifer Lord, NP; Yazhini Ravi, MD; (front row) Robert C. Scott III, MD, PhD, FACC; Chittoor Bhaskar Sai-Sudhakar, MD; Allan L. Anderson, MD, FACC, FAHA clinic where the surgeon and the cardiologist see the pat ient together so that they can discuss both medical and surgical treatment options,” Ms. LaFerriere says. “It’s a big deal that cardiothoracic surgeons are actually in the heart failure clinic collaborating with the cardiologists.” Dr. Scott agrees that the collaboration between cardiologists and cardiothoracic surgeons works well. “Often, there can be a disconnect between the medicine physician and the surgeon. Here, we think of ourselves as a team.” Dr. Sai-Sudhakar agrees. “We have to work as a team to identify what is the right thing for each patient. It’s a group effort,” he says. The Advanced Heart Failure Clinic comprises specially trained physicians and surgeons, nurse practitioners, clinicians, dieticians, physical therapists, pharmacists, social workers, administrators, and others. “All these different specialists and caregivers come together to help the patients throughout the disease process,” Dr. Scott says. “It’s really a team approach; all team members help educate patients and work with them to ensure the best care and outcome possible.” The multidisciplinary team helps patients create a lifestyle that will help them live with and hopefully avoid the effects of their disease. “Baylor Scott & White Health is unique in that we’re very fortunate and blessed to have a lot of resources, not only instruments and equipment, but also people,” says Dr. Scott. “We’ve got a lot of combined experience,” says Nance Conney, director of transplant and mechanical support for the department of cardiothoracic surgery. “Having all these experts and resources in the healthcare system allows patients to get the same quality of care no matter which location they go to. That really doesn’t exist in a lot of other places,” Dr. Scott says. n —Robert C. Scott III, MD, PhD sw.org | May 16 THE CATALYST 19