The Catalyst Issue 22 | September 2015 | Page 6

COMMITMENT | to patients and the future Autoimmune hepatitis can be treated medically, but primary sclerosing cholangitis cannot. “We don’t have a good treatment for that disease,” Dr. Vincent says, “and it can cause cirrhosis and cancer. The only cure for it is a liver transplant.” By the time she came to Dr. Vincent, Mrs. Barcak already had cirrhosis, or scarring of the liver. Symptoms can include fatigue, weakness, itching, fluid retention, high blood pressure, and more. Regional collaboration benefiting the patient Mrs. Barcak’s health worsened in 2006 when she suffered from an enlarged spleen. Surgery was necessary to remove her spleen and gallbladder. It was clear that her situation would continue to deteriorate without a major medical intervention. It became imperative to place Mrs. Barcak on a liver transplant list. As Mrs. Barcak’s complications multiplied, Dr. Vincent grew to admire her patient’s fortitude. “During this time she worked and had a family, and she just pushed through it,” says Dr. Vincent. Four years later, with no liver forthcoming from the national (deceased) donor transplant waiting list, Dr. Vincent suggested to her patient and the Barcak family that they consider Baylor Scott & White’s living donor liver program based in Dallas, but they didn’t want to pursue it at first. “Initially, I wasn’t sure I wanted anyone to have that kind of surgery for me,” Mrs. Barcak says. But by 2014, Mrs. Barcak’s health had deteriorated to the point that she had been hospitalized several times for bile duct infections, and Dr. Vincent again broached the subject of a living donor transplant. “I felt like it was time to revisit that option,” she says. “I know most of the physicians on the liver transplant team at Baylor University Medical Center in Dallas personally, and have a good working relationship with them.” She consulted with specialists from Baylor Scott & White in North Texas, including Giuliano Testa, MD, who created the Living Donor Transplant Program, and Tiffany Anthony, MD, a surgeon in the program. The turning point came last December, when Mrs. Barcak and her older sister, Lani Young, age 38, went on a “sister trip,” as they refer to it, to Hallettsville, where Mr. Barcak’s family has a farm. “When I arrived, I immediately got really, really sick,” says Mrs. Barcak. They got back into the car and drove two hours home to Rockdale. That night, Mrs. Young decided she wanted to learn how she could become her sister’s liver donor. In January, Mrs. Young underwent three days of tests to determine if she was a match for her sister, and healthy enough to undergo the surgery. Dr. Anthony says a donor advocate Baylor Scott & White’s expert physicians in the north and central regions collaborated to bring Mrs. Barcak a higher quality of life through the health system’s living donor transplant program. Tiffany Anthony, MD 6 THE CATALYST September 15 | sw.org Jennifer Vincent, DO Giuliano Testa, MD