The Catalyst Issue 19 | August 2014 | Page 22

COMMITMENT to patients and the future Passion for PATIENTS AND THE FUTURE TEXAS STRONG In the swirl of activity surrounding the birth of Trevor Goehl and his twin sister, Heather, their parents completely forgot what they had decided for their daughter’s middle name. Their new son was unexpectedly born with a rare bone condition called osteogenesis imperfecta (OI), so their forgetfulness is understandable. Several hours later, after things had calmed somewhat, the Goehls selected a family name for Heather. Today, Trevor still finds this family story entertaining, since it shows that even as a baby he managed to stir things up! “I’m responsible for changing Heather’s name,” Trevor said proudly as he wheeled around the office of his family’s Stihl tool shop in Bryan this past spring. “Because of all the drama you were causing at the time,” his father, Jeff, chimed in from behind the computer. “That’s right,” Trevor replied with a smile. 22 THE CATALYST August 14 | sw.org The 23-year-old has an indomitable personality, engaging those around him as he reaches new heights with goals he sets for himself. Trevor has Type 3 OI, the most advanced form of osteogenesis imperfecta, also known as brittle bone disease. The genetic condition prevents bones from forming, hardening, and growing normally. People with OI frequently break bones, have fractures that rarely heal completely, and don’t grow to full stature. The tough early years Scott & White doctors told the Goehls that Trevor might not survive the first days of life. In the early 1990s, when he was born, OI wasn’t well understood in the medical community. “He was very fragile,” says Trevor’s orthopedist, Hanes H. Brindley Jr., MD. “It was the type of OI where you are very concerned about survival.” At birth, both of Trevor’s arms and A rare bone disease doesn’t break the spirit of Trevor Goehl, who inspires others and relies on family, friends, fitness, and a positive attitude to help him through