The 10 Leading Patient Engagement Solution Providers in 2018 Leading Patient Engagement small | Page 21

LEADING
1 10
PATIENT
ENGAGEMENT
EN
The
“
We focus on education and
training to increase the
capacity and capability of
patients to
understand and contribute to
medicines research
and development
ensure the optimum development of medicines and access
to healthcare.
Words of Gratified Clients
EUPATI’s strength lies in its construction as a public-
private partnership and as a collaborative multi-stakeholder
consortium of patient organizations, the pharmaceutical
industry, academia, and not-for-profit organizations hosted
at the European Patients' Forum. EUPATI’s products are not
only designed by multi-stakeholder teams but also delivered
by them. This ensures that the company can offer the first-
hand experience of patient engagement for both the ‘sides’
of engagement. Being a customer-centric company,
EUPATI has made many clients satisfied with its services
and solutions and below are few of them.
· “EUPATI has been a game-changer in the empowerment
of patients because we can see people trained by
EUPATI almost everywhere, be it in regulatory
committees, industry-led research projects and clinical
trials, academic projects or ethics committees.”-Jan
Geissler, Patvocates & LeukaNET.
· “The expert training course is certainly a unique asset
and achievement with almost 150 patient experts
trained and more on the way. They are the ones who
can really actively participate in all the decision points
with the industry, regulators and HTAs [health
technology assessment bodies]. Beyond that, I think
the toolbox on medicines R&D, the material that is
available on the website and now used by more than
1.2 million people worldwide, is a huge achievement
and allows everyone around the world to use the high
Solution Providers 2018
quality-controlled material.”- Matthias Gottwald,
Bayer Pharma
Elevating Employee’s Growth by Rendering Diverse
Opportunities
EUPATI provides a unique opportunity to the individuals
involved on behalf of their organizations in the public-
private partnership to form relationships with other experts
across their own and other stakeholder groups. This melting
pot of personalities, perspectives, and expertise not only
gives EUPATI its strength, expertise, and authority but also
empowers and develops its members to drive effective co-
creation and engagement within their own organizations.
This would also encourage its employees with a strong
network that provides endless continuous professional
development.
The professionals at EUPATI work together to bring its
pieces of the medicines R&D puzzle together to ensure
that EUPATI trained patients have the necessary broad-
spectrum knowledge to represent their communities.
EUPATI strongly believes that- “The essence of Patient
Engagement is about co-creation and partnership.
Therefore, Patient Engagement Solution Providers need to
walk-the-walk themselves, designing their solutions as a
partnership between patient experts and others. This
ensures that the solutions put in place meet both the needs
of the companies and the communities with which they are
engaged, ensuring expectations are met for all, and
effective medicines development occurs to bring made-for-
purpose medicinal products to market in a safe, efficient,
and cost-effective way”.
Upcoming Plans
Today, patient engagement is being recognized across the
industry as being a necessary component of modern
medicines development. EUPATI initially developed the
capacity in the patient community in Europe to build the
community of patient advocates that are able to engage at
an expert level. With this approach, pharmaceutical
companies and patient organizations are recognizing their
lack of infrastructure and capacity to implement systematic
patient engagement throughout the life-cycle of medicines
R&D.
EUPATI has set a framework for patient engagement with
four stakeholders i.e. pharmaceutical industry, ethics
committees, regulatory authorities, and health technology
assessment bodies in 2016. Since publishing them in
Frontiers in Medicine in 2018, EUPATI will be rolling out
training programs aimed at these stakeholders ensuring that
the things will be executed flawlessly.
December 2018
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