Support Network - Northeast

Northeast Region: Support for PSP / CBD / MSA

Peer Supporters

If you are in search of one-on-one conversation about the journey you are on, please find the names and contact information of our peer supporters. Peer supporters are available to offer practical care tips, connect with local resources, and provide emotional support. Feel free to reach out to anyone on this or other regional lists, regardless of location.

Support Groups

Support groups are safe and dedicated spaces to connect with and learn from individuals and families on similar journeys. CurePSP ' s network of regional support groups offers opportunities to meet others in your community impacted by PSP, CBD and MSA. You can also visit www. psp. org / ineedsupport / onlinesupport-groups for CurePSP ' s national support groups

Connecticut

Peer Supporter: Susanne McAvoy City: Darien, CT Email: susanne. mcavoy @ gmail. com Phone: [phone] Experience: Cared for a parent with PSP

Peer Supporter: Allen Nixon City: Farmington, CT Email: aleinixon @ comcast. net Phone: [phone] Experience: Cared for a spouse with PSP

Peer Supporter: Joanna Rieger City: Darien, CT Email: joannasweber @ yahoo. com Phone: [phone] Experience: Cared for a parent with PSP

Connecticut Support Group for PSP / CBD / MSA care partners Location: Meeting virtually- contact facilitator for link Meeting Time: 4th Thursday of the month from 6:30pm – 7:30pm ET Facilitator: Al Nixon, aleinixon @ comcast. net

Maine

Peer Supporter: Janet Edmunson City: South Portland, ME Email: janet @ janetedmunson. com Phone: [phone] Experience: Cared for a spouse with PSP / CBD

Maine Support Group for people with PSP / CBD / MSA and care partners Location: https:// us02web. zoom. us / meeting / register / tZMvcOytqDIsGNUZ6I2SaynOuWfc26UqdwS