State of Caring | Page 7

STATE OF CARING REPORT 2016 Type of support Transition from child to adult services resulted in a significant reduction even though her needs are the same. Almost half of carers (48%) have practical support in the form of equipment in the home of the person they care for, such as hoists, grab rails or easy grip handles. Nearly a quarter (24%) use technology to help their caring role and 29% have practical support from care workers. Nearly a third (29%) of carers surveyed have help from family or friends, showing the importance of a support network. More than half 59% Almost 1 in 5 carers (18%) have practical support in the form of a break from caring for themselves. 22% of carers surveyed have a Motability vehicle, which enables them to get out and about with the person they care for. For those caring for someone with a learning disability, day centres continue to be an important source of support with 1 in 5 carers (19%) looking after someone with a learning disability using a day centre. of those reporting a change say the amount of care and support services they receive has been reduced because of cost or availability. Reduction in support A third (34%) of respondents to our survey said that they or the person they care for has experienced a change in the amount of care and support services that they receive. More than half of those reporting a change (59%) said the amount of care and support they receive had been reduced because of cost or availability of services. Care workers now come more frequently but are provided by a private company rather than council. The quality of care provided has gone down since this happened with little continuity due to so many different care workers coming in and virtually no communication from care provider’s head office regarding times of attendance, care worker names etc. This means I am basically on call 24/7 in case they don’t turn up or do what they are supposed to do. This includes 12% who have cut down on the amount of care and support they get because the cost has increased or their personal budget no longer covers it, and 13% said that the care or support service was closed and no replacement was offered. Paying for support services Less than 1 in 10 (9%) carers reported that they have been asked to pay for support services for themselves, although over a quarter (27%) of those receiving care have been asked to pay. In just 7% of cases both the carer and the person they care for said they had been asked to pay. In over half (57%) of cases where the carer and the person they care for qualify for services, they do not have to pay for these. Most of these respondents were on means-tested benefits and extremely low incomes. Nearly half For those who are asked to make a financial contribution towards the cost of care and support, nearly half (47%) say they struggle to afford to pay for it. 07 47% of those being asked to contribute to the cost of care say they struggle to afford to pay for it.