Starlight Issue 5 | November 2016 | Page 2

Child Life Toy Drive Interested in leaving a legacy at McLane Children’s Hospital through a bequest or planned gift? You might be surprised how easy it can be and how you can financially benefit your loved ones while giving to your favorite charity. Please call 254-899-3769 to learn how you can make an impact for generations to come! Happy Birthday, McLane Children’s! PRECIOUS TIME (CONTINUED) Four years later, Bella is ahead of the curve for children who have survived an extended period without oxygen. “My hope was so grim,” Mrs. Buerger says. “She’d gone without oxygen for so long that she would most likely never walk, never talk, and would need a feeding tube. But ECMO made the difference.” ECMO took over for Bella’s lungs, oxygenating her blood as she breathed and allowing her lungs to rest. She was also kept in a medically induced coma to allow the swelling around her brain to heal. Luckily, the cool water of the pool helped preserve her brain function. “The problem has December 5 - 16 Donate a new, unwrapped toy and help us bring a little joy to a child in the hospital this holiday season! to be reversible,” Mr. Greer says. “ECMO doesn’t cure anything; it only buys time for healing.” After three days, Bella recovered enough to discontinue ECMO therapy. “We see this quick recovery quite a bit. For instance, babies in the NICU might be on ECMO for days versus the ventilator for months,” Mr. Greer says. Bella stayed in the pediatric intensive care unit at McLane Children’s for just over two weeks before transferring to an in-patient rehabilitation program in Fort Worth for six months. “She had to relearn how to do everything from walking, talking, to feeding herself and chewing. It was almost like having an infant again,” Mrs. Buerger says. Now, at age six, Bella runs, rides a bike, speaks English and Spanish, and has no fear of water, according to her mother. “After a near-drowning, some children can walk and talk relatively normally, but most don’t even get that far,” Mrs. Buerger says. “On the scale of recovery, no one looks like Bella and it’s because she was on ECMO.” Although this military family is now stationed out of state, Mrs. Buerger still keeps in contact with the McLane Children’s emergency room staff members who treated Bella. They also visit whenever the family is home, just so the staff can see Bella’s astounding recovery. “The emergency room staff doesn’t often get to see how they impact their patients in the long term,” Mrs. Buerger says. “It’s important for them to know they do make a difference.” Do you know ECMO? •The ECMO machine is one of the most difficult devices to master in the healthcare industry •One child on ECMO requires two machines, one as the primary and one as backup •ECMO can also help patients waiting for an organ transplant “MY HOPE WAS SO GRIM. SHE’D GONE WITHOUT OXYGEN FOR SO LONG THAT SHE WOULD MOST LIKELY NEVER WALK, NEVER TALK, AND WOULD NEED A FEEDING TUBE. BUT ECMO MADE THE DIFFERENCE.” — Elysia Buerger Staff, patients, families, and members of the community celebrated together at the McLane Children’s fifth birthday party. McLane Children’s celebrated its fifth birthday in early October with food and fun for the community, and a new name! Baylor Scott & White McLane Children’s Medical Center unveiled its new signage at the birthday party and announced plans for expansion in three areas: in-patient bed capacity, emergency room service, and neonatal care on the McLane Children’s campus. Staff, patients, and community members celebrated the day with face painting, carnival games, a jump house, and a dance party. The festivities also included fun booths about tooth brushing, safety, and asthma education. Superheroes and royalty dine with the Grandparents’ Club! Superheroes and princesses gathered to welcome Grandparents’ Club members and their grandchildren to a special breakfast in honor of their gifts to McLane Children’s. Grandparents’ Club gifts are used to fund medical equipment, patient comfort items, and so much more. We invite you to honor your grandchildren in a unique and special way by making a gift to the Grandparents’ Club at McLane Children’s in their name. To learn more, contact Rachel Clark, Foundation Specialist, at 254-899-3766 or [email protected]. Teen Advisory Board exceeds fundraising goal! The Teen Advisory Board has raised more than $26,000 as part of Children’s Miracle Network Hospitals (CMNH) Extra Life program, far exceeding their original goal of $18,800. Extra Life is a 24-hour gaming marathon uniting thousands of players around the world in support of CMNH. The program uses the power of the gaming community to generate awareness and anyone can use the online platform to raise funds for the children treated every day at CMN Hospitals. The funds will help purchase two vital pieces of equipment for McLane Children’s. The first, a Blanketrol, provides whole body cooling therapy for babies born in emergency situations that might decrease the oxygen supply to their brains. The cooling therapy can help slow or even prevent longterm brain injury by slowing down the body’s systems. Many on the Teen Advisory Board have personally benefited from the second piece of equipment being funded. A Vein Finder helps healthcare providers insert an IV or draw blood from small children, whose smaller veins can be otherwise difficult to From the teens: Thank you to all our donors, friends, and family for your generous support! Members of the Teen Advisory Board successfully raised enough funds to purchase a Blanketrol for Baylor Scott & White McLane Children’s Medical Center. locate. This helps avoid unnecessary discomfort and makes the experience much less frightening for children. The Teen Advisory Board is made up of McLane Children’s patients who want to make a difference for other patients, from newborns to adolescents, by offering recommendations to hospital leadership based on their own personal experiences. As a jump-start to their Extra Life efforts, the teens held a bake sale at McLane Children’s and raised $1,856 toward their goal.