Special Lupus Awareness Issue May 2017 | Page 7

3.18.84 — 3.2.15 BY MONICA VICTOR T wo dates separated by a dash etched on her headstone. The first, the day she was born; the second, the day she breathed her last. And the dash in between — well, it represents the life that she lived. From childhood to adulthood to the invasion of the “wolf”, the lupus, that ended her life at 31. Nazy had not been feeling well. She was always tired and in constant pain, her ankles and feet puffy and her joints pained from inflammation. There were days when her hands were so white they looked like all the blood had been drained from them. A tiny rash took up residence in just that one spot near her left eye and tiny bumps hid beneath her thick dark hair.   “I think I have lupus,” she nonchalantly said to me as she walked down the stairs of our apartment one morning back in June 2013. The cadence in her voice was natural and from the expression on her face, I couldn’t tell whether she was alarmed, devastated or worried. But she looked tired. Tired and spent from staying up all night doing research on the Internet that led to her self-diagnosis. A visit to the doctor, numerous tests and blood work confirmed that she indeed had lupus —Systemic Lupus, the more severe form of the disease. While the family agonized over the diagnosis in silence, Nazy didn’t sweat it. She always embraced challenges with grace and by nature was courageous, strong, and resilient. 07