Special Lupus Awareness Issue May 2017 | Page 46

LUPUS: WIDESPREAD YET WIDELY UNKNOWN You've probably never heard of it but it's one of the most painful and pervasive auto-immune diseases that exists. It is believed that 5 million people throughout the world have a form of lupus, yet many people had never heard about it until it hit close to home. There are about 4,280 cases per 100,000 population and the highest prevalence is among Afro-Caribbeans. Although the disease affects members of all races and nationalities, blacks have a worse prognosis, due in large part to the increased prevalence of renal disease (kidney disease). Lupus, according to the stats is much more common than leukemia, cystic fibrosis, multiple sclerosis, muscular dystrophy, pernicious anemia, rheumatic fever or Hodgkin’s disease. Yet, only 15% of newly diagnosed lupus patients had even ever heard of lupus. It is a gravely misunderstood and misdiagnosed disease.  Even the name and symbol is confusing. Although lupus got its name from the wolf, it is symbolized by a butterfly. The other symbol for  lupus is a purple ribbon. 46