Research User Group Newsletter Keele University RUG Spring / Summer edition | Page 17
PPIE Volunteer Robert Taylor with PPIE team member Laura Campbell
The lyrics to Emeli Sande’s ‘Read All About It’
were chosen as the soundtrack to the video.
Emeli’s motivational words fitted perfectly
with the history and raison d’etre of the
Research User Group, describing how
important it is to speak up and speak out;
Netherlands PPIE expert Maartin de Wit
Simon discussed PPIE over the last ten years
and emphasised that patients and the public
should be valued and supported during the
entire research process. Representatives from
NIHR, Arthritis Resarch UK, Primary Care
Consortium, CRN, School for Primary Care
Research, CLAHRC and a host of local groups
were present.
"You've got the words to change a nation; But you're biting your
tongue; You've spent a lifetime stuck in silence; Afraid that you'll
say something wrong; We're all a little different, there's no need to
be ashamed."
Speakers on the day included Simon Denegri,
who is the National Director for Patients and
the Public in Research at the NIHR and Chair
of INVOLVE.
17
10 YEAR CELEBRATION
As the event continued, several Primary Care
Sciences research and clinical staff spoke about
the various ways in which the RUG has created
meaningful partnerships with patients, carers
and the public within the centre, to design and
deliver high quality research which is relevant
to patients and their families.