Recovery ‐ Newsletter of the GBS Association of NSW
Mum signed him out of hospital and she cared for him
at home for the next five years. His life was full of health
issues and he still had tingles in his hand and feet. I had
Christmas at home with mum and dad and I could see
dad was in pain, but being the country man, he never
let on.
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I do not have Katie’s story but she was amazing, leading
her life to the full for as long as she could, contributing
to the community with her innovative business.
Kind regards,
Sharon Stacy
Your feedback is important to us. This is your
page where you give your views on any subject
that is of interest to you.
Sylvia Anstee
Your comments on articles that appear, or that
you would like to see in Recovery are welcome.
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Thank you for the GBS-CIDP newsletter. Most of
Australia would be unaware of the struggle of many and
the good work you do.
Our family will never be the same since GBS, I wonder
how dad got it, we blame the flu injection that year. Dad
was convinced of that. But we will never know.
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Hello Ken,
I wish I knew more about GBS and how painful it is?
All the information I read states that people can recover
and lead a normal life. I didn't see that in my dad, I saw
him in pain and he battled it to the end.
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Thank you for the work you do.
Name supplied.
Dad ended his life and shot himself whilst lying in bed.
He obviously wanted the pain to end and I don't blame
him, I miss him every day.
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Please find $100 electronically transferred as donation
and in recognition of Katie Clee’s battle with Guillain
Barré disease. If you generally provide feedback to the
family as a matter of course and would like to use our
names you may do so. Otherwise, we are happy to
remain anonymous.
On the 18th of April 2016, a Monday night, mum put
Dad up into bed. GBS had come back and Dad knew it
would be time to go back to hospital. A proud man who
didn't want to fight the GBS battle again.
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September 2016
Thank you for your phone and email support. I was
having trouble finding and interpreting the donation site
for GBS.
When dad was in the Bendigo Base Hospital, the Lord
Mayor was in the room next to dad and he had GBS for
the second time. He was really bad. He had no use of
any of his body. I crossed my fingers and hoped dad
would never get GBS again.
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Dear Trish,
I asked him what he remembered from having GBS. He
told me it was incredibly painful, but he didn't remember
much about being in hospital.
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If you or someone you know is having trouble coping
remember no one needs to face their problems alone. You
can seek help at Lifeline: Phone 13 11 14 or beyondblue:
1300 224 636. editor.
I'm writing to you as my dad was in Bendigo and five
years ago was diagnosed with GBS, he spent 108 days
in intensive care. He had a tracheotomy and did not
remember much!
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Then of course there are those diagnosed with CIDP who
have other issues and treatments to deal with. We can only
hope that somewhere in the near future someone will come
up with a cure or at least an effective treatment for the
symptoms of GBS/CIDP.
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Thanks for sharing your story Sylvia. I can only imagine
how painful it was to write your letter. Recovering from
GBS results in many different outcomes. Some people have
a complete recovery with no residual affect and lead very
normal lives.
email: [email protected]
or mail:
The Editor,
GBS Association of NSW Inc.
PO Box 572
Epping NSW 1710
Others suffer from neuropathic pain and maybe confined to
a wheelchair for the rest of their lives. Most fall into
something in between.
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