jenna
Hello, my name is Jenna. I am 25 years old. I was diagnosed with SWS at 2
months old. I have glaucoma in my right eye and a PWS that covers 70% of my body.
I had eye surgery when I was 8 months old, and continue to see the same doctor for
yearly checkups. Thankfully, the pressure in my eyes has been normal and stable for
years. I had a couple of laser treatments in grade school, but my parents chose to stop
them and let me decide whether or not I wanted to continue. I chose to stop lightening
my birthmark and I have never regretted that decision.
I have been fortunate in that I’ve never had any seizures or learning delays. I did
experience some motor delays and attended therapy at 14 months old to learn how
to walk. I excelled academically and graduated third in my high school class. I went on
“Meeting someone for the first time can
be awkward – I worry about what they
will say or wonder what they are thinking.
But, I know in my heart that facing these
challenges has made me a stronger
person.”
to college and earned a Bachelor’s degree in Psychology and I am currently working
towards my Master’s in Applied Psychology.
Life with PWS can be challenging. People will stare and make rude comments.
Meeting someone for the first time can be awkward – I worry abou Ёݡ