conner
Connor came into this world on February 15th, 2011. He was born with a port wine
birthmark that covered the entire left half of his face. No one really told us what it was
when he was born. A week after he was born we went and saw his pediatrician. He was
the one who informed us that this could be SWS. My heart sank, as if I did something
wrong while carrying him.
We ended up seeing the neurologist the following week; they ordered an MRI, and
to our surprise the MRI was completely normal. On July 15, 2011 Connor had his first
seizure. This was the worst day of my life. He ended up in Children’s Hospital where he
stayed for two weeks. While we were there he had another MRI, which showed SWS in
both hemispheres of his brain. We were then told he would need a hemispherectomy
on the left half so he can try and live a normal life. To this day, everything is great. My
child has some vision problems, and he can’t walk without a brace, but he is God’s gift
and we were so blessed to have him. I would never change anything about him.
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“My child has some vision problems, and
he can’t walk without a brace, but he is
God’s gift and we were so blessed to have
him. I would never change anything about
him.”
The Sturge-Weber Foundation