Inspiration
I was happy and relieved to be labeled as a worrywart and alarmist. The day we went back for test results was the day my life changed forever. By this time I had three children, all in tow, because I thought they were going to tell me nothing was wrong with my daughter just simply developmental issues that would work themselves out. When the doctor told me Jane had Muscular Dystrophy I couldn’t even speak. I was completely caught
off guard. I had an infant in my arms, my two year old was swinging the yard stick around like a sword and Jane was sitting on the examination table pulling all the gloves out of the box. How could this be happening to me? What do you mean Muscular Dystrophy? What is Muscular Dystrophy? No one in our family has had this disease you must have mixed up our charts! Not my family, not my daughter. I have so many hopes and dreams for this beautiful baby of mine. I can assure you I was not inspired at this moment, nor was I inhaling! I was completely devastated and shocked. “I have to feed my baby I have to go home” was all I was capable of uttering. I’m sure the doctor thought I was crazy. But shock makes you do irrational things. After my husband and I wrapped our heads around the diagnosis, and what the research told us and what life was going to hold for all of us we were motivated to action by this diagnosis. Muscular Dystrophy is a muscle wasting disease. There is no cure. My beautiful daughter, Muscular Dystrophy, no cure, this is not something you just accept. We must act intentionally from here on out, we must find a cure. My daughter has the good fortune of having a grandfather of great vision.
1. Inhale. September 2013 69
Jane visiting the Eiffel Tower in Paris