No. 4
Participation Brings Risks and Benefits
While some risks, such as potential side effects of a new drug, are
inherent in research, participation also may bring benefits. Some
people say they gain a sense of control over their disease. Research
also could offer more time with Parkinson’s experts and early access
to emerging treatments.
No. 5
Your Safety Is Top Priority
Safeguards are in place to minimize risk in research trials and studies.
Researchers must have all study plans and materials approved by an
outside committee of experts, and must monitor for and report any
undesirable changes in a person’s health — whether a result of the
study or something else — throughout the course of the research.
No. 6
There Are Many Ways to Find Trials
and Studies
Start by asking your doctor about opportunities for research
participation, but also look to your support group or your PD
community for referrals. Some health care centers and patient
organizations hold in-person research events, and there are
opportunities to learn about trials on the internet too. You can register
online with the Foundation’s Fox Trial Finder (foxtrialfinder.org) to be
matched with recruiting trials that need volunteers as well.
Six Facts about Clinical Research Participation
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