Table of Contents
02 A Letter from The Michael J. Fox Foundation
Patient Council
04
Six Facts about Clinical Research Participation
07 Chapter 1
Clinical Research Basics
What clinical research is, who can par ticipate and how to get involved.
19 Chapter 2
Research Participation throughout Your
Parkinson’s Journey
Why research studies require individuals in their early years with
Parkinson’s and later in their disease course.
29 Chapter 3
Genetics and Parkinson’s Clinical
Research
What to expect when participating in genetic research and what to
consider before undergoing genetic testing.
40 Afterword: Where Do We Go from Here?
Reflections f om a Repeat Research Volunteer
42 Appendix
44 Glossary
50 Credits
52 Index