Table of Contents
02
Introduction
03 Chapter 1
Clinical Research Design and the
Participant Journey
Case Study No. 1: Engaging K ey Stakeholders by Forming a Study
Working Group
08 Chapter 2
Assessing Opportunities and Challenges
Case Study No. 2: Br eaking Down Transportation Barriers to
Research Participation
Case Study No. 3: S4 Study Sit e Selection
17 Chapter 3
Building a Recruitment Strategy
and Toolkit
Case Study No.4: S TEADY-PD III
Case Study No. 5: An E ducational Toolkit for Engaging the Hispanic
Parkinson's Community
Case Study No. 6: Institut e for Neurodegenerative Disorders Physician
Referral Network
Case Study No. 7: Using F acebook Ads to Recruit Study Participants
36 Chapter 4
Crafting a Retention Strategy and Toolkit
Case Study No. 8: R etention Strategies for Parkinson's Progression
Marker Initiative
42 Glossary
44 Credits
46 Boards and Councils
1