Our Voice May 2014 - Annual Lupus Awareness Edition | Page 24

24 Our Voice / May 2014

The loud tapping of his heavy Mont Blanc fountain pen against

the wooden desk snapped me back to reality. Perhaps it was my

hearing. Yes of course my hearing! I politely leaned in and

asked my physician to repeat his words. Again he said Lupus. I

looked at him as he rustled through some papers and I thought…

perhaps it’s his eyesight. I defiantly repeated my name with a

smug “Are you certain?” tagged onto the end. He looked

at me as if I had two heads. Why shouldn’t he. He had

been my physician almost all of my adult life. Of course

he knew me so it had to be true. As he spoke I found his

words incomprehensible. In my head he had morphed

into Mrs. Donovan, Charlie Brown’s teacher.

How did I get here? I worked out, ate right and drank gallons of

water. None of that mattered. I was nice to people, helpful and

accommodating. That didn’t matter either. I sat thinking back

to what I thought to be the flu. A flu from which I never

seemed to recover. I was tired, achy and feverish. My

fingers, hands, wrists and elbows constantly ached but

wasn’t that carpal tunnel? I quietly eyed his fancy pen.

Almost snatching it and depositing it into my purse as I

made my exit.

The sun was beating down on my bare back. I wore a red and white

sundress, my red cardigan carelessly tossed across my arm. My hair

was in curls, I had a chipped nail and freshly painted toes. My sandals

and my purse didn’t match. I looked at my phone with three missed

calls; one from my son and two from the office. I got into my car. There

was 60 cents in the cup holder, 2 quarters, 2 nickels and a pinkish

colored jolly rancher. Glide by Pleasure was on the radio. I remember

everything about this day. I thought it to be the end of my life.

All of knew of Lupus were whispers that my crazy cat lady Aunt Katie had

it. I immediately thought I would slowly lose my mind and surround

myself with out of control felines. I rang my father who laughed an

explained she was not my Aunt with Lupus but was just certifiable. He

tried to lighten my mood by telling me how he took her to a mental

hospital and collected a $100 finder’s fee. He told me both his sisters have

Lupus. I thought that’s not possible. My Aunt Dee just spent a week with

me. She came down to run the Peachtree Road Race. But, my Aunt

Sweetie was in a wheel chair. His words were pointed “Call Dee… Don’t

call Sweetie”. Of course I didn’t listen.