NYBC Enterprises Community Report - Page 19

• We offer a full line of factor concentrates in all sizes ordered directly from the manufacturer .
• Sharps containers are provided at no cost with optional waste removal service .
• Home infusion training is available to qualified patients .
• Patient advocacy and access to resources to assist patients in the event of insurance loss .
Living as a patient with hemophilia , throughout her elementary and middle school years , Rose missed many days because of complications due to her condition . She was also diagnosed with ulcerative colitis at the start of her high school years at Half Hallow Hills High School West in Dix Hills , New York . Knowing the lifesaving power of blood donation first-hand , Rose and her family coordinated several blood drives , holding the Rose Bender Blood Drive for many years at their local temple . “ It just made me love Hills West and our student body that much more for collectively saving so
many lives and for making such a significant difference in our community ,” Rose said .
Over the years , Rose has shared her story at multiple NYBC events and has spoken at numerous New York City Hemophilia Chapter events , also serving on the organization ’ s board . Our dedicated NYBC employees have given their time to support the New York City Hemophilia Chapter as well , participating in the Chapter ’ s annual walk in Riverside Park to raise funds for hemophilia research . NYBC staff members have a table at the walk , distributing educational information and interacting with physicians , supporters , patients , and family members .
In spite of her health challenges , Rose ’ s outstanding GPA led to her being named Valedictorian of her high school class . She was offered admission to Harvard , Princeton , Yale , MIT , and Columbia , and she attended Yale University as part of the Class of 2019 . Rose ’ s bright future is a true testimony to the power of communities connected by a common mission to save lives .
18 / NYBCe COMMUNITY REPORT