Network Magazine Winter 2019 | Page 34

• Is it accessible and equipped for people with disabilities? • Does it have many patrons with a disability? • Are the needs of people with a disability factored in when designing programs? • Are the needs of this population considered when advertising or promoting the facility or programs, both internally and externally? • Have you ever considered who might not be using the facility? Walking a path unchosen For a person with an ID, not long after you are born, you embark on a journey over which you have little control. Society has already started to dictate your place and how you will be treated. The start of school, when Facebook feeds fill with proud parental snaps of kids dressed for their first day, is not such a positive time for everyone. If you’re lucky, you may attend a mainstream kindergarten, but even if this is the case, your experience is unlikely to resemble that of the other children and their parents. If you live with an ID, your school life will involve not being invited on playdates and being excluded from the birthday parties that all the other children attend, something that breaks a parent’s heart, week after week, year after year. For many children with ID though, regular schools aren’t their destination: this is the age at which they will start to be segregated from the rest of society as they are sent to a special school. By this stage, the battle for funding is well and truly under way for the families, who find themselves in a continual round of special meetings and fights for funding, as well as for their child’s right to be educated, included in activities, and treated with respect. By the end of primary school, either mainstream or special, the whole family has learnt to fight. When you have a child with a disability, you spend your whole life in a constant battle for your child’s rights. It’s exhausting, but there really is no other option. If primary education is a challenge, secondary school poses a truly terrifying prospect. What options are available for a child with an ID? Will they fit in? Will they be teased and bullied? And will the school provide the support the need? The high school years can be difficult enough as it is, but for those with disabilities, it’s a whole other level. The fact is, many mainstream schools lack the skills and resources needed to accommodate people with intellectual disabilities, and are often not an option. Choice is very limited, and we, like many parents in our situation, chose a special education setting. Leaving school without year 12 means university, college and many courses are not open to you. This makes the prospect of employment very unlikely. Decades ago, very few people went to university, and many jobs didn’t require a higher education. As uni attendance has become more commonplace, so have qualification requirements for many roles. As such, the low level of education attained by people with an ID is even more notable – and employment even harder to come by. Without a job, people with an ID are also without money, and as such are much more likely to live in poverty. In fact, Australia has a very poor record and is ranked last of all OECD countries when it comes to relative poverty risk for people with a disability. As an Australian, I find this embarrassing. Both my daughter Caitlin and my sister work in mainstream jobs, but this really is, sadly, quite unusual for a person with an ID. In fact, Caitlin has two jobs, working at the Our classes offer a fun, safe environment in which those with an intellectual disability can enjoy being active and have the opportunity to move without competition or judgement. 34 | NETWORK WINTER 2019 Department of Premier and Cabinet and at YMCA, Dandenong – proof that, with persistence, the barriers can be broken down. The role of physical activity You may be wondering what all this has to do with fitness, with gyms, with you. In order to understand how to be more inclusive, and why it’s important, you need to understand the barriers to education and employment, the social isolation, and the constant fight to be included that someone with a disability encounters. Throughout their schooling, a child with an ID will find it very hard to find a sport or physical activity in which they are able to fully participate. Many sports are competitive and age-based, which disadvantages or excludes them. Watching Caitlin’s struggles, and bearing witness to the lack of inclusion in sporting areas, led me to create inclusive fitness programs for the fitness facilities I oversee. Our classes offer a fun, safe environment in which those with an ID can enjoy being active and have the opportunity to move without competition or judgement. I believe everyone has the right to enjoy exercise and experience the feeling of belonging that comes from being part of a team or class. Progress, but further to go Life for a person with an ID is a fight, buts it’s certainly not all negative: there are huge achievements, happy times and, in many respects, an ordinary life. They certainly won’t be feeling sorry for themselves and they are used to barriers, so much so that they expect to encounter them. In the 1950s and 60s, people with IDs were locked away in institutions. We now live in more enlightened times, and things have dramatically improved – but are we doing enough? Is it acceptable to isolate people with an ID into special education settings, away from mainstream students who don’t get to grow up with, and learn acceptance for, them? If all kids went to kinder and school together, and played sport together, even if it meant dividing up for lessons, wouldn’t we all learn from each other? There would be less being afraid of what to say or do, as it would become the new normal to have a society of mixed abilities studying, working and playing together. If 1 in 5 people in Australia have a disability, then shouldn’t 20% of our friends, 20% of our members and 20% of our staff have disabilities?